Melanoma Diagnosis

Hi everyone. This might not make any sense at all, I'm feeling a bit all over the shop at the moment. 
Last month the GP referred me urgently to dermatology for a mole that had grown, bleeding, rough etc. I knew the likely outcome. 
Monday last week I was seen in clinic, the Doctor took one look and said 'that's coming out now' and removed the mole (it's on my elbow) and skin around and underneath. He told me he was convinced it was melanoma. 
I'm 32, 2 little ones and I'm not a very well person, immunosuppressants and auto immune diseases so I started to panic. Last night quite late I had a phone call to say it's confirmed as Melanoma. Next stage it to see plastic surgeon who'll likely suggest general and a lymph node something or other that I can't remember the name of, involving a dye and more skin being removed. 
I have no more info than that, no clue how bad it is or anything and I am just all over the shop. I'm scared, I don't know what to do and I just feel like a mess. I understand that it's not lung cancer or breast cancer and as my ever so helpful mother put it 'well it's not cancer cancer is it it's just skin cancer' but it's still a cancer diagnosis is it not? 
anyway I just wanted to know what to do with myself, has anyone else been in this situation and what did you do? Obviously with COVID-19 everything in the hospitals is a but up in the air but I just don't know where to turn for help or advice. 
tha k you, and sorry that this probably doesn't make sense and I'm rambling. 
Tash x

  • Hi - so sorry you are having to deal with all this especially on top of everyting else. Am going to flag this post [@AngieT]‍ so that another member of the forum who has had to deal with Melanoma can see it and hopefully respond to you within the next few days. Take care and please don't worry about rambling or whatever. Your post seemed perfectly cogent and even if it wasn't everyone on this forum would more than understand. love Sunny x I've had lots of skin cancer surgery but only dysplasia so far not yet melanoma, but we have family history of melanoma and do take it seriously - sending lots of good wishes and please understand how you are feeling is entirely normal

  • Hi Tash,

    Thank you Sunny for flagging me to Tash's post.

    I'm sorry that you have been plunged into the deep end here and been given little information by the hospital. 

    A melanoma diagnosis is always a shock & takes a while to get your head around, especially at the speed yours has happened. Once melanoma is diagnosed the next step is always another surgical procedure called a Wide Local Excision (WLE) - this is where a wider margin of tissue is taken from the area to ensure any stray cancer cells have been mopped up, a 'belt & braces' procedure. 

    The depth of your melanoma decides what stage you are - did they tell you the depth when they rang you? This link explains the different Stages www.cancerresearchuk.org/.../stages-types

    The lymph node procedure that was mentioned is a Sentinel Lymph Node Biopsy (SLNB) and this is only offered if the melanoma is more than 0.8mm in depth. Patients don't have to have this procedure if they choose not to - this link explains the WLE & SLNB in full www.guysandstthomas.nhs.uk/.../sentinel-lymph-node-biopsy-for-malignant-melanoma.pdf

    It's a lot to take in but please read these links because they explain everything far better than I can in a post. The most important question you need to ask is - What is my Stage & depth of my melanoma? Hopefully you are early Stage (Stage 1) which has a 95% chance of successful treatment by surgical removal. Once the WLE and SLNB (if offered) are done you will receive regular check ups for a while.

    Sadly your mother has the incorrect view that melanoma isn't proper cancer, something that many believe until it happens to them. It is proper cancer because, left untreated, it will spread internally & can be fatal. Melanoma is now the 6th most diagnosed cancer in the UK and it has a 15% death rate so it must be taken very seriously. I don't want to scare you or your mother but it may be helpful to show your family this link which shows the reality of a melanoma diagnosis - you need your family & close friends to understand & educate themselves so that they can give you the support you may need www.cancerresearchuk.org/.../melanoma-skin-cancer

    All that being said, there is a very, very good chance that your surgery will cure the problem and that you will have no further recurrence in the future. I will send you a friend request so that, should you accept it, I can send you a private message with some more information that you will find helpful.

    You are being treated quickly so the odds are in your favour for a very good outcome. Try not to worry or panic and I'm sure all will go well. If you read my profile page you will see that I've had many years with this disease but I'm still here & fighting fit. Good luck & please let us know how you get on,

    Angie (Stage 3 melanoma patient)

  • Thank you both so much for your lovely supportive replies. I wasn't expecting anybody to pay any notice. I'm extremely grateful. I've also accepted the friend request Angie. What wonderful people you are! X

  • No worries Tash, I will send you a message x