Not me but I wish you all the best. Hope you get the support you need from this forum, and think positive. 

Thank you for your reply

Hi Plb

Yes I have just been diagnosed with invasive lobular cancer too on the 2nd July I have to get a mastectomy and chemotherapy plus possibly radiotherapy too.  Hope you are doing ok and feel free to chat anytime xx

Hope we can keep in touch to see how things go

Hiya 

Yes that be good to keep in touch xx

Hi there Plb,
I've just joined this forum to respond to your message as I was searching for a soul in the same boat as me. I was told on Monday that I have invasive lobular cancer and am also waiting for my MRI. It might be good to keep in touch? 
I hope you're feeling okay. I vary between okay and overwhelmed. 
All the best xx
 

Hi

it would be good to keep n contact

i am awaiting my MRI results - I know one breast for sure  but await results on the other for surgery decisions

sending healing and hearts ( obviously the emojis don't show )

Hi,

I was diagnosed with lobular at the beginning of May in my right breast, since then I have had a lumpectomy, re excision and finally a mastectomy so I am pretty sick of the sight of the operating theatre. I am interested that so many of you got MRIs,      I just got a mammogram and ultrasound which showed a 19mm tumour that turned out to be 49mm plus there were 2 others, it would seem that an MRI would have saved me going through a lot of operations and would surely have saved the NHS a lot of money!! I'm just grateful that I am now clear and I have to say the actual surgeries were really not that bad, I only had to stay overnight for the mastectomy and really would have been happy to go home the same day. Hopefully with the benefit of the MRI you will need one operation but I think it's the emotional rollercoaster that is the worst part and will take the longest to recover from. I have often found some very helpful advice just reading through this forum.

i hope all goes as well as it can for you x

Sorry to hear that you had all those ops but so glad to hear that all done now

Are you having radio and chemo ?

if so I hope all day is going well

thank you for sharing your experience

Sending healing 

I see the Oncologist next Friday to discuss the treatment options. They have said radiotherapy but I didn't think I would need it after a mastectomy with clear margin, hormone therapy and bisphosphonates, which I'm not keen to take. Chemotherapy is a bit of a grey area, they said I was 4.2% on NHS Predict, above 5% they recommend it, below 3% they don't. What confuses me is when I use NHS Predict I get a completely different answer! 
 

Have they given you any indication of what your treatment may be or do you have to wait for the MRI?