goblet cell adenocarcinoma

Good evening,

My partner recently had a ruptured appendix recovered really well and quickly following the op then two weeks later received a call from the consultant saying they had found a cancerous tumour called goblet cell adenocarcinoma. Whilst the consultant he is under is amazing they don't know much about it so referred him to a different hospital.The CT scan came back clear and his colonoscopy removed 3 polyps two of which were benign and one that was normal fatty tissue. We of course were so pleased, relieved and felt extremely lucky with this news. However yesterday he received a call from the hospital and they have asked for his appointment to be face to face and I am allowed in with him as there will be a lot of information to take in. 
I was probably being naive to think the clear CT and Colonoscopy was it we were done, he is young and we can go onto put this all behind us but now this relief has passed and I am so worried and anxious inside as is he I know although hiding it well. I can't help but wonder do they know something more that we don't / have they not told us something? I feel so in limbo has he got it hasn't he and driving myself crazy inside. I have come here because I feel so selfish feeling this way as it is not me who has this and he is being so strong about it. 

Everything I read is so scary and clinical saying how rare it is, the surgeries that last hours, rapid downhill etc. I just wanted to know whether anyone else has gone/going through this with positive outcomes? 
 

  • Hello Steel.A

    It's good to hear that your partner has recovreed so well from his surgery and that his post op CT was clear and the polyps they removed were non cancerous. However it's absolutley understandable that you're both feeling overwhelmed by things and scared about what this appointment may mean.

    Given that your partner has had a very rare form of cancer I would imagine that at this upcoming appointment then would want to discuss what they would like to put in place in terms of a follow up. I'd suggest writing down any questions the two of you may have before the appointment as it's not uncommon to forget things. It's also really handy to be able to write down information that you're given so you don't forget once you leave. 

    I know it's tempting to use Google to search for information but for now give it a wide berth. As you've found, it will give you lots of scary, and sometimes inaccurate, information which may not be relevant to your partner and will lead to you feeling more anxious about things. 

    You might find it more helpful to speak to one of our nurses before the appointment. I'm sure that they will be able to offer some support and advice about the kind of things you might want to ask when you see the Consultant. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Do keep in touch Steel.A and let us know how you get on. We'll do our best to support you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator