Hi, I was diagnosed with Esophegul cancer last month due to them also finding a mass in my lung as well, picked up by the CT scan, the PET scan only confirmed the ones they had found and no more.  I am still in the diagnostic stage and not got a treatment plan yet, the wait is excruciating I am now up to 84 days from referral. They need to check if the cancers are connected or not, which is why there has been the delay. My Barrett’s area  is 3cm  but the cancer cells are 7cm. 
i am only able to eat liquids now and had a feeding tube fitted to my small  intestine last friday as I was not getting enough nutrients. 
so far I have had, 

Endoscopy, CT scan, PET scan, Broncoscopy, CT Scan Biopsy. I am hoping now all the diagnostic tests are over and I will hear at the end of next week all the results. 
They have told me they are looking at a cure as well, please let me know how you get on. 

How kind of you to respond. We are awaiting a phone consultation ( because of COVID) on Tuesday morning. Had a bad day emotionally today. Desperate to hear that the PET scan echoes the results of the CT and that there is definitely no spread. We are hoping for quick urgent surgery to remove it and bring him home to me. Been told that it is either stage 2 or 3. Please 2. He was diagnosed 7/7 after endoscopy had ct scan straight after no spread. PET scan was Friday 17/7.  Told the consultant phonecall is booked Tuesday morning and they said the results would be available on the system by then. So desperately hoping for a good news week.  

My severe disabilities of course are seriously complicating matter ( secondary progressive multiple sclerosis) He is my husband carer best friend and reason for fighting. 
 

Like you so worried and scared. Thank you so much for your kindness please let me know how you get on I will also post when I know.

Best wishes to us all

Bernadette 

Hi bebe

just looking through the chats and found your posts. Your situation with your husband is exactly the same as mine!

56 yr old husband confirmed yesterday as adenocarcinoma of oesophagus. Ct scan looked okay, but pet scan tomorrow .Before final staging results‍♀️

how goes with you.

i am an emotional disaster zone, especially on how to explain to young kids

Our consultant was really upbeat for a cure! That is after chemo and oesophagectomy

sending best wishes

ginny

Hi Ginny

so nice to talk to you even though the circumstances are not.

Tony was diagnosed through a gastroscopy on the 7th of July. He has had both CT and PET scans which has shown tumour 4cm localised, no lymph nodes involved and no spread.

he has had to isolate for two weeks because his surgeon wants to do a laparoscopy surgery as a day case on Thursday that is to be followed by an endoscopy ultrasound on Monday. As we understand it these tests are to confirm the scans findings and to be sure that we are where we are. The consultant said that if that is the case he will be able to stage it at stage two and if we are very lucky stage one.

Like you what will follow will be surgery the decision will be made whether straight to oesophagectomy surgery orchemotherapy first then surgery. Either way it's surgery. We to have been told to hope for a positive outcome.

He must come first now I know that is but I am scared and frightened and being as dependent as I am ( as you can see from my previous posts I have been severely disabled with Multiple Sclerosis for the past 26 years and my darling has looked after me this whole time) . So I not only fear greatly what's going to happen to him and us to so what will happen to me it's the worst should happen. Even as I write it I feel selfish. But there it is this form is the place to say what you feel.

Because I was young ( we'd only been married 6 years) when I got ill we unfortunately never had children I'm sure yours will be a great comfort to you and a great strength to you both now.

Well Ginny neither of us know what the future will hold but I think we can both say so far so good I am trying to enjoy each day with him and continue to be positive but he's going to get better and these results are all going to be good please please.

And I have a special device that allows me to speak to the iPad and write so I am happy to chat any time you feel you want to good luck to you all and please keep your fingers crossed for us this week. 
 

Best wishes 

Bernadette

Hi Be be, 

oh yes, what a time it is for us. 

Our consultant is probably not going to do any more investigations if the pet scan is okay.

He mentioned a laparoscopy, but then though no, crack on with the chemo and surgery.

we are in oxford and have the specialist unit- so I am hoping the guy is as good as he sounds!!

the MDT are fab, they were all over us like a rash yesterday, as I was having a nervous meltdown over the news.

god they move fast! It’s only been a week since the endoscopy!

I don’t envy you with the old MS - tricky, but more so emotionally at the moment possibly. Anyway , good to have found a fellow traveller.

forgive me if I take a few days to respond sometimes- work and school hols..... and just to add to the mix - THIS

Hi Ginny

i wonder how your husband and you are doing?

Hi

just wanted to post an update. My husband Tony has now had all his staging tests laparoscopy endoscopy ultrasound etc and it has been staged as 2b that's a T3 tumour no lymph node or spread detected.

he has his pic line fitted next Thursday and chemotherapy begins next Friday. He is to receive FLOT chemo 4 cycles over 8 weeks. I'm very worried as to what to expect how he will be. The plan is if the chemo does what it should ie shrink this thing this will be followed by Oesophagectomy surgery then more chemo to hopefully finish. The consultant team have said as things are now Tony is on a curative pathway. A long road ahead but we have hope for a good outcome 

hope all well your end

bernadette 

Hi B, 

we seem to be living in a similar parallel world x

yep we are all staged at T2 m0n0.

He starts chemo next week. FLOT 4 sessions over 8 weeks.

then repeat PET 6 weeks later the chop.

I seem to be ‘coping’ (whatever that means) okay. He does too.

but I have no doubt there will be an emotional poo Storm further down the line.

i have  done the whole ‘why us’ stuff- coming to the conclusion ‘why not us’, why anyone?

i suppose it has boiled down to ‘it is what it is’ a bit of a cliche these days.

i wonder sometimes if I am in ‘denial’. I am I hope being positive, but realistic.

i was  chatting to a medic friend of mine the other week and she said something useful ‘cancer is almost like managing a chronic disease these days’, ups and downs.

stay in touch

bw

ginny.