Stage 1a melanoma

Hello everyone,

 

I have been reading this forum (rather obsessively) in the last 3 weeks while waiting for my diagnosis, and have found this forum to be an extremely helpful resource. I decided to join and start posting here if it could help others.

 

Well, the long story short is that I am in my mid-30s, of Asian descent, really careful with the sun, and only have a total of 10 extremely tiny moles all over my body, and I have been recently diagnosed with Stage 1a melanoma, 0.2 mm Breslow depth, on the sole of my foot. My consultant is satisfied that they got everything out in first excisional biopsy, but as expected, I will be going back for a wider excision. I have been put on the waiting list as I'm not considered an urgent case. Really not looking forward to have further surgery because the sole of the foot is really a terrible site to have surgery!

 

I think the worst part for me was the waiting and not knowing. Once I heard the words melanoma, 0.2 mm, I was actually very relieved. I'm not sure what the future holds. Definitely worried that this will all come back worse in a few years' time, but trying not to think about that.

 

In case anyone finds this info useful, I contacted my GP about it and they asked me to take a photo of the offending lesion. Based on the photo, they got me to come in on the same day for teledermoscopy. The dermoscopy pictures were sent off to consultant dermatologists under the 2-week referral guideline, but within 4 days I received a letter outlining my appointment with the dermatologist at my local hospital. At my appointment, they looked at the lesion through the dermoscope again, but told me that "It did not fit any single diagnostic box." Excision biopsy was done basically  within the hour. I received the histology results within 3 weeks. The skin cancer nurse called me on the phone and asked if it was ok to give me the news over the phone. My understanding is that this isn't the normal way to inform you of biopsy results, but I wonder if this is all because of Covid? Of course I said yes because the wait was killing me!

 

Anyway, I want to thank everyone who has posted their stories here because it has really helped me, and I'm sure will continue to help me while I deal with the wide excision.

 

Parents
  • Hi Lucky,

    It's so good of you to post your experience on the forum as many people are going through this but very few come on the forum and share their story.

    I'm so glad that your melanoma was caught early and I hope you aren't waiting too long for the WLE. 0.2mm thickness is the shallowest I've ever heard it being caught at so well done to you & your GP for catching it so early. Also, moles on the sole of the foot or the palm of the hand are usually treated as suspect as it's not normal for them to appear in these areas (I had one removed from there & thankfully it was benign).

    Good luck for a quick recovery from the WLE and please keep us up to date in how it all goes,

    Angie (Stage 3 melanoma patient)

Reply
  • Hi Lucky,

    It's so good of you to post your experience on the forum as many people are going through this but very few come on the forum and share their story.

    I'm so glad that your melanoma was caught early and I hope you aren't waiting too long for the WLE. 0.2mm thickness is the shallowest I've ever heard it being caught at so well done to you & your GP for catching it so early. Also, moles on the sole of the foot or the palm of the hand are usually treated as suspect as it's not normal for them to appear in these areas (I had one removed from there & thankfully it was benign).

    Good luck for a quick recovery from the WLE and please keep us up to date in how it all goes,

    Angie (Stage 3 melanoma patient)

Children
  • Hi Angie, 

     

    Your posts have been some of the most helpful for me over the past few weeks. Thank you so much for sharing your experience and wisdom. 

     

    I'm really shocked by how early we caught it. It was a relatively small lesion, too, barely 6 x 3 mm at its widest points. The histology margins came back clear at 1.7 mm around the lesion and 4.2 mm on the vertical dimension. For these reasons my wide excision has been classed non urgent, and I've been told the wait is up to 3 months, but I don't know what the wait time for a more urgent case is like for comparison. I'm just glad to know the thing is out of my body. 

     

    So, all in all, I am feeling unlucky but lucky at the same time. Just trying to keep positive. 

     

    Lucky

  • Hi Lucky,

    The wait times for urgent cases & pre-Covid were about 3 or 4 weeks. Sadly Covid is having an impact on surgery. Biopsy excisions are being done quicker than the norm but non urgent surgeries are taking longer. The thing to remember is that the biopsy excision got rid of all the melanoma. The Wide Local Excision is just a 'belt & braces' procedure to ensure that nothing broke away & lodged in the tissue nearby. Because your melanoma was so small & the original excision was so large, there is very little chance that anything was missed so that is why they aren't classing it as urgent. I know it's better for your mental welfare to get it all done & sorted quickly but try not to worry about it. Tell them that you are happy to go on the cancellation list should any occur - that way you may get it done quicker. Keep positive & keep us up to date. We are here if you need us x