Partner has grade 4 brain cancer and I'm 35 weeks pregnant

hello very new to this website never thought id be posting on here but I hope everyone okay and is keeping strong :) my partner has grade 4 cancer brain tumour and got told its fast growing hes had two operations to have 2 shunts put in either side of his brain to drain fluid after he had the sencond one put in its like I have my hubby back hes his normal self im wondering if anyone else has have known or experienced this at all im 35 weeks pregnant and petrified he isnt going to be around long I have so much hope amd faith we will beat this but is there a cure? X thanks long post but theres lliterally nobody I can talk to 

  • Hello Jayne and welcome to the forum. 

    I'm so sorry to read about your husband's diagnosis but it's good to hear that the most recent surgery has given you all some positive results. 

    It's difficult enough dealing with a cancer diagnosis at any point but I can imagine that things are even more difficult for you both as your baby is due soon. I do hope that you're able to enjoy some moments of the pregnancy together and are looking forward to your new arrival. 

    We don't have many members with brain tumours here on the forum but we do have lots of members who have a loved one that has had cancer so I hope that some of them will post to say Hello! and share their experiences with you. 

    I don't know if you've already visited the website but do have a look at The Brain Tumour Charity. They have lots of information and support options available and it's possible that you'll connect with others in similar circumstances there. 
    if you'd like to speak to one of our nurses then you're most welcome to give them a call. I'm sure they will be able to offer some support and information. You can call them on 0808 800 4040, Monday to Friday 9am to 5pm. 

    Keep in touch with us here Jayne if you want. You are not alone. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Thank you they say its quite rare for brain tumours....its frightening because the consultant reckons for his sort of age its normal and very common they reckon he doesn't have long he finished his radiotherapy today he now gets a month free to rest even more nerve racking knowing we gotta sit and wait for results but we have so much hope and praying that hes going to be ok X hes my rock I dont want to think this is it for him 30 is a young age his baby isnt quite due yet but we got more bad news baby has stopped growing at the moment its one thing after another but I dont know how anyone else copes with grade 4 cancer or u know anyone with it...what do I do n say its so hard to talk to him because I dont wanna say the wrog thing :( X love him to much to upset him he cried because his hair is now starting to fall out he broke down but picked himself back up but deep down hes hurting on the inside 

  • Hi there.

     

    First of all I am so sorry that you are experiencing such an emotionally stressful time when this is a time that you and your husband deserve to be excited and joyful. I noticed your post a couple of days ago and have waited to see if anyone else responded and, to be honest, I did think twice about responding.
     

    I have had recent experience of caring for a loved one with a grade 4 brain tumour, glioblastoma but unfortunately my dad did die, aged 69, because of this on 21st June 2020. I must stress that every case is different and individual and sometimes it's not always helpful to compare however I do understand as I wanted to read about others' experiences also. My dad wasn't offered and didn't receive any treatment other than palliative care and that is a difference that I noticed on the surface when reading your post. Of course there will be many more differences.  It was a relatively short illness (diagnosed mid April after mild but concerning symptoms), it appeared to be pain free (for my dad in terms of physical pain) and he never appeared to be scared. It was obviously very hard for me as a daughter, my mum and my sister as I felt like we started the grieving process a long time ago. It goes without saying it's still hard. I love and miss my dad so much and always will. He died at home surrounded by his girls who adore him. 

    I am more than happy to talk to you more about my experiences caring for my dad but I will let you ask me what you wish to know. Obviously my story ends sadly and I will also understand if you don't wish to know more than I have put in this reply. Either way please know that I am thinking about you and your lovely young family and sending you lots of love and strength xxx

  • I am so sorry to hear about youre dadnits not easy losing someone whos so close to you especially being diagnosed with something that they didnt want or wasnt there fault its a strange world....im really glad you replied because I have been sat wondering for days on end what do u say to my hubby im only 22 and hes 30 its shocking to sit down at night time and try and process that he has cancer its not something that we ever wanted to hear he had some hair loss the other night and he broke down in tear he cried and that man never cries hes strong and completely strong physically and mentally...hes finished his last radiotherapy session yesterday and he starting to feel some side affect now "tiredness,sun burn,spots/rash" Im sopositive something worked because he lost 2 stone with first being diagnosed with just a "tumour" and now 5/6 weeks down the line hes 15 gained another 3 stone so before he was 13/2 Im scared myself because I had a midwife appointment yesterday and got told baby has stopped growing inside of me :( we dont know why but its like theres a loss everywhere I go and something I touch X really hope youre okay and if you ever need to talk please dont hesitate always here goes for everyone