Polyposis!

Hi all, 

 

I've just been diagnosed with a polyposis syndrome which means I'm somewhere between very likely and certain to develop bowel cancer at some point in my life. I'm waiting on the results of genetic testing to see what treatment might be. 

 

I'm keen to know if there's anyone else here with a similar diagnosis and to hear how you found out about it and how you're doing now! 

  • I've just had a quick look through the forum for you Liverpool123 and unfortunately I couldn't find anyone discussing this lately.

    I'm not sure if you've tried this already but you may have more luck finding people with polyposis syndrome on the Bowel Cancer UK website.

    I hope you're able to connect with others soon and that all goes well with any treatment that is offered.

    Kind regards,

    Steph, Cancer Chat Moderator