Breast Cancer - has bad is chemo going to be

Hi,

 

I was diagnosed with grade 2 HER2 positive breast cancer almost 2 weeks ago and everythings moving so fast.

im booked into start chemo;EC for first course, on weds 1st although this may be delayed a week now depending on them having my most recent biopsy results and to be honest I'm just abit scared.

Im not an emotional person and I feel so much guilt about the effect it is and will have on my family I don't really want to worry them by showing fear so I just wondered if anyone who's had this type of chemo could tell me what to expect or what you experienced.

 

also meant to be having my hair cut short today ready and this feels like such a massive thing , stupid I know .

 

thanks and sorry for long post Vikki x

  • hi,

     

    good of to hear you’re are not feeling to bad with treatment. I’m halfway through my 8 cycles now finished 4 of EC and start tomorrow on 4 Docetaxel and targeted therapies so let’s see what new fun that brings

    i had ups and downs with how I felt during treatment 1st quite bad , 2nd really pretty well and 3rd & 4th bit of a decline again...although tbh I think it has a lot to do with my lack of resting, hydrating etc I’m a terrible patient so I hope you continue not to feel too bad

     

    Sometimes I think I’m more adjusted to the lack of hair than I actually am when ii get in public and I’ve  started to lose eyebrows and eyelashes now which is difficult they’re still there just thinning .

    on a positive note I haven’t had to shave my underarms for a couple of months so silver linings

     

    Good of luck with treatment 

  • Hi [@Avfcstu]‍ 

     

    sorry for late reply , I just wanted to check in and see how your wife was doing

     

     

  • im due to change chemo/ meds on my 4th round. 15th october. Really nervous about it changing! Im halfway through now too, im having 6 cycles then mastectomy then radiotherapy. Im hoping to get back to some sort of normality early next year. And yeah, i haven't had to shave under my arms or legs for ages. And its quite nice not having to really bother with my hair lol. Im not a great patient either, im scared of everything! But i think we just have to find a way to cope with all of this in the best way we can. Good luck to you too 

  • Good morning I was diagnosed with bc the week before lockdown. I had 3 cycles of EC and 3 cycles of docetaxel. With the EC I did need the anti sickness meds which worked brilliantly, I can only describe how I felt as hungover without the head ache this lasted about a week. I felt tired but managed that with exercise, sometimes a walk round the block sometimes a few miles depending how I was feeling. Having had a lumpectomy with no one allowed in with me and all appointments over the phone, going for chemo was lovely the nurses were all fantastic and it was nice to feel almost normal (strange as it sounds).

    Don't be afraid to share your fears with your family they may be having the same worries so you can support each other. With EC the nurse sits with you for most of it which is nice. 

    Good luck and remember to rest when your body tells you to. 

    Hope all goes well x

  • The hangover without all the fun feeling that’s exactly how I described it too my friends  :laugh:

     

    i have had had my first docetaxel today as finished my 4 EC cycles so we’ll see how hat goes I’m expecting pretty similar side effects tbf .

     

    i hope you are on road to recovery now x

  • Hi Vikki, 

     

    Well we had the results back from mri scan and it has infact spread to her thorax, there was another shadow on her liver but they investigated that and wasn't anything to worry about. 

     

    But they have told her it is incurable. So she will be having chemo for the rest of her life now. 

     

    She is coping well with chemo, she is generally just knocked for 6 for about a week later then is more back to normal for 2 weeks, then it's time for the next cycle. 

     

    How are you doing? X

  • Hi ,

     

    I am sorry to hear that news, I can’t imagine what you are all going through and having to come to terms with hearing those words.

     

    Sounds like your wife is a fighter and glad that coping well with the chemo. 

     

    Im good thank you thankfully there was no spread and I am very similar on the chemo bad week then couple of ‘normalsih’ weeks. I am currently waiting for some unrelated biopsy results sic we’ll see what more 2020 has to bring ‍♀️

     

    I wish your wife all the best with her treatment and sending positive vibes to you all x 

  • Yes it's all very surreal and crazy how life has dramatically changed in the space of 3 months. 

     

    Just got to keep plodding on I guess! 

     

    I'm glad yours hasn't spread and fingers crossed for your biopsy that you have nothing else to worry about x