Hi Jenn,

Thank you so much. I called the professor I am under yesterday. He said the doctor I saw on Friday 'made a mistake' and 'got the wrong end of the stick'. Thy3f does indeed mean 'indeterminate' so I need an operation to diagnose or rule cancer out.
 

Although it is a huge relief knowing I may not have cancer after all, I feel really distressed by the whole experience. There were many tears and horrible conversations as a result of the mistake they made. They still suspect cancer so I now have the worry of not knowing either way as well as the anxiety of

an operation, which will either remove nodules or part/all of my thyroid (which works perfectly well). 
 

They didn't even apologise for the distress caused to myself and the family and friends I decided to tell. If it hadn't been for my own research, I'd be none the wiser. I would strongly advise anyone reading this to request copies of all results and letters. 
 

Hi Sophie

I'm in the same situation as you, only without the dreadful mis-communication that you have had to deal with. I'm sorry to hear that you had this to deal with on top of everything else and thank goodness you did your research. Seems strange in these modern times that they are not able to confidently diagnose from a biopsy, but there you go. Now just to wait for surgery.

Hi all

I have found some reassurance reading through this post thank you for sharing your experiences and I hope you are all well. I am 39yr old female and have a thy3f nodule too. My sister had follicular thyroid cancer when she was 25yr old so I am convinced I have this too I have my op on Monday coming to remove the right side of my thyroid. I feel like my whole life is on hold right now and am so scared. Thank you so much for sharing your experiences. I just felt that I needed to comment

Lots of luck for your surgery on Monday. I also found it really frightening but now it's done I feel so much better knowing it's gone. As soon as I got to the hosptial I felt better as I could see everyone else was in the same boat and there were so many people taking care of me. Mine turned out to be a benign lump but with cancer cells inside. Looks like I will be keeping my half a thyroid and just being monitored closely. I feel in good hands and I'm sure you will be well looked after too  
Fingers crossed for good news xx

Thank you Nicky. I just had a phone call today to say my op has been delayed until 19th as my consultant has to self isolate. I was all built up too. I suppose it's only 2 weeks though. Pleased you are ok xx

Hello all, I have just found this thread. I have been diagnosed with THY 3F and have been advised to have half my thyroid and  the lump removed. However, the consultant was very blasé about the ramifications should results show cancer present. So I am going for a second opinion. In the meantime, I can feel small nodules on the opposite side of my throat to the large nodule and I am truly frightened that little nodes of cancer are forming.

please can you post updates on your operations. I hope all went okay.

regards

Sheila

Hey, my surgeon was also very blasé and in my case, there was no doubt. It was clearly malignant. The reason for their reaction is probably that thyroid cancer is...well, not really usually serious in the way cancer usually is. The most common forms have very high survival rates - close to 100% among under 50s - and there is rarely any need for chemotherapy or radiotherapy. It's generally "just" a case of removing the thyroid.

I had my full thyroid removed as the biopsy showed malignancies. I was in hosptial nearly a week, but felt pretty much fine after about 3 days and was pretty bored for the last few days. I took a month off work as I am a teacher and really needed both to be able to turn my neck quickly and for my voice to be 100%. Even the first couple of weeks after I returned, yard duty got interesting as I couldn't make myself heard across a busy yard (it was fine in the classroom and I honestly didn't even realise my voice was weaker than usual until I had to call across the yard) and I had students running around, saying "Miss says you're to come away from that" or "Miss says it's time to go in to class."

It is now two years since my operation - well, two years and three months and...it has really had no effect on my life. The worst thing was the stress of it all. My neck still gets a bit tingly sometimes, but...that is mildly annoying at worst.

I am so glad you have had a positive outcome. Did they prescribe medication since you have had the whole thyroid removed? Do they monitor hormone and calcium levels?

Yes, they prescribed medication, which replaces the thyroid and yes, they monitor hormone and calcium levels.

A lot of people take thyroid medication, either because they have had their thyroid removed for various reasons or because their thyroid is underactive. I've only found this out since having mine removed and a number of people have mentioned either that they had theirs removed or a family member had or that they or somebody they know is taking medication for an underactive thyroid.

I will add that even if thyroid cancer spreads to the lymph nodes, it makes very little difference. It does increase the risk of recurrence, but the odds are still in favour of it not reccurring, but it doesn't affect survival rates.

Hi [@shs1]‍ I’ve just found you having had my biopsy results of 3a confirmed today. Surgery recommended to remove lump and left side of thyroid which will be scheduled for within 4 months. How are you doing?

Hi CazStu,

I am due for a hemi thyrodectomy on Monday 6th June. Feeling pretty nervous .

Sending you lots of love and luck. I hope it all goes well. Please keep me posted. ️

Sending you lots of love and luck. I hope it all goes well. Please keep me posted. ️