Breast Cancer during Covid Journey

Hi 

I'm 37..I was showering in April.and came across something that felt like a bruise but wasnt visible at all in my right breast. I thought it might be period related as I was due to start. A week later it was still there I spoke to my GP who sent a referral to a breast clinic. Within 2 days I had an appointment with the breast clinic. It was Tuesday when I saw the consultant he thought it was a cyst but when the radiologist had a look she said she would do a biopsy and mammogram. She wrote her report whlist I was there and sent me back to the consultant, he was joined by a Macmillan Breast Nurse, although the biopsy results would take a few days he said they thought it was cancerous. I was on my own as I didn't think it was anything. After I finished the Macmillan nurse took me to a side room sat with me and explained what would happen and supported me. To be honest I would encourage everyone to seek the support of the Macmillan nurses they go to every appointment with you and are like your key worker and speak with you after. Even after surgery they support you with questions you have. I got my biopsy  results the same week on friday and I was introduced to the oncoplastic surgeons. They have been great, they spoke about the results and what they thought they showed me pictures of reconstructions to give me an idea of what lumpectomy and mastectomy reconstruction look like. originally I was going with lumpectomy, and the surgeons would get a clear margin around the site of the lumpnso all cells had been removed. I had a mri the following week  and the mri showed a second and third place in the same breast that might be cancerous. On one they did a second biopsy and it came postive, the third they couldn't find via ultrasound. I went with mastectomy with immediate reconstruction. As it is covid the NHS are working with the private sector. I had my surgery at a private hospital on the 2nd June. My NHS surgeons met me there on the day and did the surgery there. They did a sentinel node biopsy. The evening before the surgery thr injected a dye it was painless in the breast so that they could see the first lymph nodes. They took the first and two others. My sentinel has come back postive the other two negative so they want to do a node clearance to check the others and see what next.

The reading I did seemed that people did reconstruction as the final thing but my surgeons did it as the first, they called the surgery nipple skin sparing mastectomy with reconstruction. I'm waiting to see if I have to have to do chemo radiotherapy. My biggest worry is with the node clearance I develop lymphedema. I just worry about it. 

I googled a lot but the Macmillan nurses are the best people for support, the other thing they did  is  give me literature to take home and read based on the conversations I had with the surgeons. I go back and read based on what bit of treatment I am on, its alot to take in.

If anyone has questions please let me know. Praying for everyone's health and happiness 

  • It's definitely a journey! I got my diagnosis in a similar fashion, back in February. I elected to delay surgery so I could have reconstruction on my big girl, to make it match my affected boob.  Sadly covid happened and that surgery was cancelled, but on the plus side my lumpectomy and sentinel node biopsy were done a week earlier than scheduled.  Unfortunately, my nodes all tested positive for cancer and I elected to have a full axial clearance.  Fortunately, they had to do another op on my boob, so they did the alnc at the same time.  I thought that was it, I'd get my all clear, nope. My removed nodes tested positive as well, so now I'm having chemotherapy. I had my first cycle 5th June. It is truly terrible, not gonna lie or sugar coat it. The nurses and staff I've dealt with have been amazing. I feel embarrassed about them being so nice to me, because it's only cancer. Not like I'm gonna die from it or anything is how I feel about it all. What has been the worst part of this journey is the isolation. My Mum, sister and daughter can't come see me and cheer me up. I see my hubby and son day in, day out and I live for my regularly scheduled zoom calls. I want hubby to go back to work, for his mental health and wellbeing, and more so he has something and folks to talk about. I would love to be at work, but working in a primary school and chemo don't mix well. I'm fed up with covid 19, because of the effect it's had on our lives, I'm fed up with the protests about blm and statue witchunts. I want to hear good news, like folk on here getting through treatment successfully, that little lad who had his legs amputated as a baby, who has raised 40k, walking round his garden, after being inspired by Captn Tom. Celebrate the good in the world. The first few posts on here are really positive, yay, and those folk who are terrified have been consoled. Cancer is scary, but it's yet to frighten me. I could do without this chemo nonsense, yes, but I'll tolerate it, because it's not forever.  I'm only glad so much research has been done that myself and others on here have successfully benefitted from it all. I've done my bit for Macmillain, Marie Curie and CUK over the years, never once expecting to benefit from their services myself. However, they really are as awesome as everyone says they are. Anyway, rambling over, chin up lovelies, we will get through this together, sharing laughter and tears along the way. Lots of socially distanced hugs xxx