Just diagnosed grade 3 breast cancer -angry and scared!

I'm not sure I'm in the right place but I got diagnosed on Tuesday with grade 3 breast cancer. I've been doing the wrong things and googling which has not helped but I'm one of those mad women who need to know everything.

i have had a bad experience getting this far. Lump found in Nov 19, told it was a cyst. It was. But wasn't told there was a 17 mm lesion under it. Cyst kept refilling and lump kept growing. It's now 30mm. Had biopsy of lymph nodes this week. CT today. Now moved my care to a different hospital with better support and credentials. I've learnt a whole new language in 3 days! My head is battered and I feel like I'm drowning in syrup one minute then not giving a **** the next. 

if you told me this was going to happen last week I'd have laughed at you.

I am not one for talking to others, I listen for a living! But I'm scared and have been stalking this site for support and knowledge so thought I'd just introduce myself and take the leap into cancer land. 
I hope I survive this place
 

  • So sorry to hear you are having such a tough time.

    Have you looked at the breast cancer now website which has a lot of useful information?

    Sounds like you are doing the right thing getting your care at a hospital you feel more comfortable being treated at.

    I am currently waiting to hear the outcome of a different cancer surgery, but have responded to your post because my mother had stage 3 breast cancer which spread to the nodes. She is still alive 24 years later. She did not have chemo, but radical surgery, hormonal treatment and radiotherapy. I remember it being a complete shock for everyone in the family as there were only days between mammogram, biopsy and surgery. 

    It is especially hard at present as some of the usual support networks are not there for people.

    I found it strange having my surgery with no one allowed to accompany me. Though I was exceptionally glad to be treated so quickly (had surgery less than 72 hours after seeing GP).

    So I wanted to wish you well and send you some hugs this morning. Hope today is a good day and not a drowning in syrup sort of day – could really relate to your description of the different perspectives and good luck for what lies aheadxx

  • Hi there and welcome to our little chat place ... 

    I had a grade three to .. and a masectomy in July 2017 ...  thought that was my lot .. as Google makes everyone feel overwhelmed...  there's lots of us breast lasses on here, and living with and after it .. 

    We tend to hear the sad ones on t.v .. but treatment has come a long way...  your at the scariest part , and although it's tough, it is doable ... so keep in touch .. we've all been there .. and got the tea shirt .. mine says "cancer touched my boob ... so I kicked it's *** ..."   Chrissie x 

     

  • Hi there Sunscared and thank you for taking the time to read, respond and send hugs. It's mad I'm on here as it is but to know others think of you and get what you say is quite remarkable. I appreciate  you sharing about your mum. Amazing she's well and I hope going strong. 
    I have been in that website and it is good. I've not been on today but very tempted as I had a pain in my rib. Cancer plays tricks with your mind and that is pretty scary. I'm getting used to this already 

    Having been diagnosed in lockdown means I am getting seen quicker. I didn't think about the lack of others being around me. 72 hours sounds so fast..... may I ask what you are waiting for? Only if you want to share of course! 
    Today has been better as I have worked and kept busy. And having a couple of responses first thing put a tear in my eye and strength in my body to face another uncertain day.

    i do hope you are managing with the wait (which is *** -can you swear on here?? ) well it is isn't it? 
     

    Friday hugs and thoughts back to you x 
     

  • Hi Chriss, and thank you for your kind words and thoughts. Helped get the day going.

    Getting perspective is so important as I'm spending many long hours in my head guessing and self diagnosing even the smallest of pains and twinges. Right now I hate my body and all the noises it is making. 
    it's strangely comforting knowing you had grade 3. It does sound like a death sentence and I'm scared. You're still here..... you still wear t-shirts! I just want them to tell me it hasn't spread and I can start treatment. Is it as bad as I read? Does having a positive head help you cope? I'm strong and fit but question my sanity x 

    I want this scary part to pass me so I can get in with what I need to do next x 

    You take care xxx

  • Thank you for your reply - much appreciated!

    I've had a lot of precancers (skin) but usually I spot them visually.

    This time around I got distracted by a lot of other things happening and instead of visual check was alerted by sensation. Whatever it is – melanoma or something less dangerous – literally hit a nerve!

    When I think about it there had been tingling on and off for several months but sensation would go after a few minutes and so I just thought maybe a bit of a trapped nerve.  Pain free post surgery so they took the right thing out.

    There is a family history of melanoma (as well as pancreatic cancer and breast cancer).

    Like you, I'm trying to keep busy and not waste time worrying.

    I can't change anything now if I did miss a melanoma or two (waiting on the results of a couple of excisions) will accept my fate. Just because the horrid lesion was growing downwards doesn't mean it had truly malicious intent. Maybe it was just playing games with me, winding me up. Totally sympathise about the rib pain! 

    When do you get the results of your scan and node tests (only share if you want to)? 

    Sending you hugs and hope you have a good weekend x

     

     

     

  • Just had a thought. If you only had some tests this week could the pain be related to bruising? Often pain gets worse a few days after rather than immediately. I think if you've had nodes taken out you are going to feel a little bit battered and sore. If you're really bothered you can always use the contact a nurse form on this website. x

  • Hello again,

    Fair play to you for your sense of reality- you're right. 
    What will be will be and no amount of worrying can alter anything. I hope your results are what you should have and not what you fear. When do you get your results? 
    Staying busy yes. Actually worked today which has helped. 
     

    I have no idea if cancer is in my family. No dad to speak of (useless) and estranged from my mad mother (She's not a good person) .... so I'm not sure where this tumour came from. Spent all day yesterday trying to make sense of what the hell went wrong...... went slightly mad.

    The pain is weird.... moved to back now. Kidneys me thinks? 
    There it goes again.... the cancer anxiety and the nonsense it drags with it. I have cancer. What could possibly top that

    Drank too much wine in my time so maybe that's catching up with me?!? 
     

    Results Tuesday.

    nodes taken out? Wow. Is that what has happened? Just thought they'd taken tissue out. My arm pit is bruised to hell mind!

    See. I have a lot to learn

    I hope you get space in your head to breathe and the thinking stops for a while x 

    Happy weekend x 

     

  • Mrs Boo

    I am so sorry you to have had the dreaded news that you have breast   cancer .your post brought a tear to my eye as like you  i never thought id interact on a site like this ,  its not nice but you realise just how many of us are going through the same feelings  and i  really understand you and your emotions.

    I to have just recently been told over the phone i have breast cancer ( last week) ive just had a bone scan and ct scan ( withoutt the contrast dye as i have a reactuin to it. 

    My son was also diagnosed with testicular cancer just befoye Christmas, hes 35.Hes had chemotherapy and hopefully after scans on the 10th june and seeing his consultants on the 25th june he will be told good news.

    Its a toigh time and im really scared about everything, they plan to.take all lympth nodes from under my arm and a lumpectomy in my right breast. But untill scans results  come back im not 100%sure whats instore .i am.nervous everytime my phome goes off , as  i I wished  it would all go away, but know ive got to stay positive but as you know its easier said than done.

    There are so.many lovely people on here who read our posts and offer words of comfort and reassurance that all your feelings  are very normal when faced with what were all going through on here.

    Its good to.talk and release your feelings and know there are people who realy do understand.

    Always here if you need a friend. Xxx

  • Thanks for your reply.

    Hope you get good news on Tuesday!

    I had expected my results by now. Last time I had a delay it was because there was a need for MDT input to decide if the margins were adequate. (Last lesion so close to being a melanoma that they treated it as one...)

    No point in wondering where the beastie came from unless you have children/siblings who could be similarly affected...  Tell doctors you don't have a full family history (not knowing family history is different from there being no family history). 

    No point in tormenting yourself about bad habits of the past. Most of us have pushed our bodies at some time during our lives, even if just through overwork. 

    After a busy day, I'm ready for sleep already. Or maybe I just need a very late afternoon nap! x

  • Sorry to hear that both you and your son have cancer. 

    Good luck for the next stage of your treatment!

    It can be really hard when multiple family members are affected by cancer or other illness all at once. It's happened in our family. My mother – the cancer survivor – is currently supporting several younger and older relatives: I'm too far away to help out and can't travel on health grounds. 

    Your son has done well getting through his chemo. Hope he gets good news in June!

    Have a good weekend if you canx