Feeling numb after diagnosis

Following a large tumour being removed from my partners colon on May 1st, he had a diagnosis last Thursday. He was told that the oncologist would call to discuss results next Thursday , however he received a call before that from a cancer care nurse regarding his wound from the op. She then proceeded to tell him that his tumour had been staged as a t4 n2 locally advanced . She could not explain really anything about it just that the oncologist would explain next week and tell him about survival rates and treatment.

we went straight on to the internet and are now seeing that he had only about 10% chance of surviving 5 years. We are in total shock. A diagnosis straight out of the blue and our minds in complete mush. A week seems a long time to wait to speak to the oncologist and the constant surging the net for answers 

Thank you

  • Hi I don't want too google so I'm asking anyone on the site that may know. When the nurse spoke to my partner regarding his diagnosis she said he had locally advanced colon cancer not advanced. 
    What is the difference? I don't want to run the risk of reading pages and pages of things I don't understand 

    thank you 

    Lisa 

  • Hi Lisa,

    I did't want you googling anything cancer related. Stay on the cancer sites for anything like that. I was just suggesting you found some advice on how to manage your stress and anxiety and that you might need some specialist input there because of what you have been through in the past. 

    As regards your cancer question, locally advanced is not the same as metastatic. So it may be that everything can be dealt with by chemo, surgery etc. You are catastrophising before you need to. You are not in the same place as you were in the past. Please, please do not take yourself to the worst place possible in your mind. 

    Take comfort from the fact that you are seeing surgeon to discuss a treatment plan!! There are treatments. And there is hope. Please do not give up hope. 

    You are looking for help in some good places such as this forum. Your GP is there for you too. You need to look after yourself as well as hubby. 

    Sorry I confused you!  Please please take care. xx

     

     

  • Hi,

    no I'm not googling as we are so confused it wouldn't make any sense at all. We just took in t4 tumour locally advanced but after rethinking it over and over again night after night we really have no idea what this actually means . 
    scared as the more I'm thinking the more worried I'm getting 

    I'm going down that whole again 

    Lisa x

     

  • Hi, no you didn't confuse me, just little bits keep niggling me about the conversation. 
    he's had a resection but she said margins were not clear said 1mm stuff but I can't really remember. She did say that it's locally advanced thought. We didn't know there was a difference and what that may mean. With lymph nodes affected we thought the worst. 
    it's all so confusing, the numbers the terminology . We just heard stage 4 and everything else was white noise. 
    m so sorry to keep on and on but these posts are really settling me and are doing comforting  x

    Thank you x

     

  • Hi Lisa,

    It is understandable to be confused. I didn't take in all the information I needed when I had my surgery because I was in shock. This is normal. 

    There is a difference between metastatic when something is in lots of places in the body and when it is locally advanced. The surgeons may be able to cut everything out and then with some chemo mop up any risk from the spread to the nodes.  You do have hope. That is why you are seeing the surgeon to discuss a treatment plan. 

    Even with metastatic cancers, the outlook is not hopeless. You have had postings from others in that position. You are not yet in that position from what you have posted on this forum. So please wait until you see the surgeon.

    Every cancer is individual. Focus on getting together your list of questions not catastrophising.

    Sending you so much positivity. Really want you to have a better day. It's not pleasant when you find yourself shaking and unable to settle. 

    Lots of hugsxx

  • Thank you. My whole insides are shaking permanently. And feeling sick. That's what we didn't understand how it can spread to nodes but be localised. It doesn't make any sense at all

    even the birds in the garden can't settle me. 
    how are you feeling? I realise I sound so self Centered  but I'm really not.  
    just trying to get a grip x

    lisa 

  • Lisa please climb back up 

    Locally advanced means it's still near the original site it hasn't moved away.. 

    Mine is classed as metastatic spine, ribs and pelvis are a fair distance from each other. As well as my lymph nodes but that is classed as something different. (retroperitoneal lymphadenopathy) please don't ask me to say it it's enough trying to spell it.

    Local is as it sounds. 

    Don't forget out into the garden and relax with your radio and the birds. 

    Best wishes.

    Billy x

  • Hi billy,

    im going to sit with my partner and get some vitamin d . I think it's just the whole term stage 4 locally advanced is so confusing especially as they said the nodes were affected too

    im trying I really am . This lockdown doesn't help

    you are so kind to listen to my ramblings at all x

    i hope you have a lovely day today x

     

     

  • Hello Lady1966,

                             l think l can help with some of your questions,but l would really urge you to talk to a nurse on this site who can really go into finer detail using their professional knowledge.The telephone number is at the bottom of the front page on this site

    Locally advanced will mean it has spread into nearby lymph nodes from the original tumour site,giving the possibility,but only the possibility of cancer cells using the lymphatic system to spread to neighbouring organs, typically the liver.This is why they remove infected nodes and neighbouring nodes to stop any spread.

    When they talk about having a clear margin,they refer to a clear area of uuninfected tissue they remove around the affected tumour tin order to ensure they leave no cancer cells behind..In my case they removed 60% of my liver in order to remove a tumour that was a third smaller

    Metastes are secondary tumours that have travelled through the body using the lymphatic system,that have spread from the original tumour site

     They then use chemo in order to mop up any remaining cancer cells that may be present

    They have not diagnosed metastic spread in your husband,so at present there is no spread,and will use follow up chemo to reinforce that.

    The good news is that the primary source has successfully been removed,chemo will commence to back that up,and constant monitoring will take place to ensure that no further spread has taken place,and they are well placed to jump on it early. Your husbands situation is nowhere near like mine,since my spread to the liver was before they had chance to exise the tumour and lymph to arrest potential spread

    Look l really feel you should talk to the cancer nurses on this site as it is very clear you are working yourself up into a very dangerous downward spiral of anxiety and depression,its 0808 800 4040

       take care, David

  • Hi Lisa,

    Yes, get some vitamin D.

    The lockdown isn't helping any of us. I'm really missing my group exercise and swimming classes.

    My GP always tells me to stay active to reduce my stress - helps with the endorphins.

    I know it's especially hard for you now as your hubby is still recovering from surgery. 

    I hope you have a good day. Do you have a camera? Is there anything to photograph in the garden? What about gardening/planting? 

    Hope you enjoy the pop master and radio. Take care!!xx