Triple negative and oestrogen positive breast cancer

Hi everyone,

I was diagnosed on Friday 15th May with grade 3 breast cancer in my right breast. I have 2 tumours, the largest is 21mm and is oestrogen positive and a smaller tumour 8mm that is triple negative. It is typical of me to have 2 different tumours in my one area, both very different!

It took 2.5 weeks to get my biopsy results back, and although I was told to expect the worst when I was there, I still remained positive that they had got it wrong, until Friday.

Tomorrow I go to see the oncologist to discuss my treatment plan, it has been proposed that I have chemo first, followed by surgery ( they can't say yet whether it will be lumpectomy or mastectomy) followed by radiotherapy.

I have also been referred to the fertility clinic; I'm 28 and although married, I haven't started a family yet, so I need to try to preserve my fertility. Has anyone here had to do the same, and can offer some insight into what happened? 

I feel very out of my depth right now, I have no control over anything. I wanted to wear the cold cap for chemo but at my hospital they have stopped it due to Covid-19. As much as I am rational and know my life is worth more than my hair, I am terrified of losing it, I don't know how to come to terms with it, if anyone has any advice, it would be greatly appreciated.

All the best,

Laura 

  • Hello Laura

    Welcome to the forum although I'm sorry to hear about your recent diagnosis. It sounds like it's been a difficult time for you. 

    I can see from your post that you were meeting with the Oncoloogist yesterday to talk about your treatment. How did the appointment go? I hope that they were able to answer some of your questions. 

    I don't think we have any members active here at the moment who have attended a fertility clinic prior to treatment starting. I'm going to suggest that you have a look online for the Younger Breast Cancer Network. They have a number of support platforms and I'm sure that you will be able to connect with women who are currently in similar circumstances. 

    We do have a number of ladies here who have had differeing treatments for breast cancer such as the lovely [@Jolamine]‍ and [@Chriss]‍. I've tagged them into this reply so hopefully they'll pop by to say Hello! and share their experiences with you. 

    If there's anything that you'd like to talk to one of our nurses about then you're most welcome to call them. They're available on 0808 800 4040, Monday to Friday 9am to 5pm. 

    Sending my best wishes, 
    Jenn
    Cancer Chat moderator

  • Oh Laura...

    Bless ya,... I know how scary this is ... where you are right now ... it's like being put on a scary roller coaster and dont know where its taking you or when you'll get off ...

    I came on here like you, scared and feeling lost ..@ jolomine took me under her wing , and helped me through .. that was 3 years ago in July... I had a grade three breast cancer,  oestrogen positive ... her 2 neg ... I thought my time was up .. I had a total right masectomy... the weird thing was the operation was the easy part ... or easier part ..

    I crumbled on being told .. hid away nearly two days , cussing , crying ..doing all the what ifs ... then my daughter in law sat us down and said no more what ifs and no more panicking .. well take it one problem at a time ... and well do it together... best advice I ever had ...

    You see cancer wants us to lay down and never get up... crumble, and give in ... but let yourself get all those emotions out .. then get your self a pair of pink vertual boxing gloves... and get in the ring ... wer all there .. wer all kicking it's butt... l started here along with 5 or 6 other breast lasses they started a thread "the good and the bad"  it tells of all our journeys... the good times .. yes there are some .. and the hard ones .. we held each other up ... all different stages and treatments... one young lass @Dizzle  was young and had all the treatment you are ... she lost her hair .. and she also got a fabulous wig .. they are amazing now .. 

    After her treatment she fell pregnant and had a beautiful baby boy .. now she's on baby number 2 .. and those other lasses  .. most have gone back to their life post cancer... a couple of us stayed here to help those like you, through their journey ..

    It's not a walk in the park, and like a rollercoaster,  ups and downs ..but it is doable .. and here I am chatting to you ...  my granddaughter is now battling acute myeloid leukaemia , she's 18 ... she's on round 3 .. and she's just lost her beautiful hair... but she will beat this ... she will get her hair back ... and you know being brave, is being scared witless but you do it any way... 

    So when your ready, look it in the eye, and tell it your ready for a fight, and it had better watch out .. you can do this ... one problem, one step at a time ... and wer always here to hold your hand ...

    Sending you a vertual hug.... Chrissie xx

  •  

    Hi Laura,

    Welcome to our forum, although I’m so sorry for the reason that you have had to join us. I lost my mum to secondary breast cancer 10 years before I was diagnosed. My diagnosis was 11 years ago and I had a second bout of primary mucinous cancer the following year. As Chriss says, we both had the shock of our lives when we were diagnosed and, in common with most people, we went straight into a blind panic. I thought that I was prepared, as I expected to get cancer at some time due to genetics. However, when I look back to those early days, I am totally ashamed by how I reacted. It was thanks to a lady called Dizzie and some of her friends on this forum that I began to view my situation more logically.

    I found that this forum gave me the advice of other people with personal experience in cancer. I found this a great leveller. You are a lot younger than Chrissie and I were when we were diagnosed. It must be particularly difficult for you when you haven’t had a family yet, but I am glad to hear that you have been referred to the fertility clinic first of all. Chriss has already mentioned Dizzle, who is still active on this site. I am sure that she will be able to give you some pointers in this direction. Click on this and it will bring you to her posts. @Dizzle. Other ladies on this site have also been through this too, but I cannot find them for you at present, as my search facility on this site is not working at present – the technical team are trying to sort the problem.

    How did you fare with the Oncologist yesterday? I expect that no definite decision will be taken on lumpectomy versus mastectomy, until you find out how well you react to chemo. I believe that one thing that scares us all after a cancer diagnosis, is the lack of control we have over our lives. Everything suddenly seems to be taken out of our hands. As Chriss said, this is not all a walk in the park. You will most likely have a hard year ahead of you, between treatment and surgery. Most of us feel that we lose that first year to fighting this disease, but things usually pick up after that and, you will gradually regain control over your life.

    The current pandemic, makes things harder for anyone with cancer. Losing your hair is a small price to pay for life. Many people find that the cold cap doesn’t always preserve their hair anyway. The wigs you get are very realistic now and, it won’t be long before your hair grows back in. Make up is now very realistic for eyebrows.

    The big factor to beating this is to keep positive. You need to find that ‘can do attitude’ – you can cope with hair loss, you can undergo surgery (as Chris said, this is usually the easiest part), you can do chemo, you can do radiotherapy, you can recover from this and, last but by no means least, I sincerely hope that you can have a precious baby at the end of it all. Having plenty of support from family and friends will help you to fight this and, I hope that you have that someone who you can bare your soul to when you need to.

    You will begin to feel better when treatment starts and you feel that you are beginning to do something about this. You have been doubly unfortunate to find that you have two different types of cancer in the one breast, but it is treatable and, that’s what you’ve got to keep sight of. There is a current thread on this site about Triple Negative Breast Cancer, which you might find helpful. If you go to the blue banner at the top of this page and click on the search engine, then insert triple negative and click. This will bring up previous posts on this topic.

    Please remember that we are always here to support you through this. Do please keep us in the loop with all that is happening with you.

    Kind regards,

    Jolamine xx