Feeling lost

My mum is 57 and has been unwell with recurring chest infections since last winter (she has COPD). She was admitted to hospital in Feb with low oxygen levels and then has been admitted a further 3 times in the last 3 weeks with the same. She had multiple chest xrays and was screened for covid-19 which was negative. They put the symptoms down to an ongoing chest infection however on her last admission she was sent for a CT scan which has shown a large tumour in her left lung. She is awaiting further investigations but has been told that surgery is not an option and because of her underlying health conditions she may not tolerate chemo if it is an option. I'm really close to mum and am trying to be strong for her, I'm a nurse and we chat openly about anything. Because of the current situation I havent actually been near mum since before lockdown. She was shielding anyway because of her health conditions. I will support her in any way I can but I am currently struggling hugely with my own emotions and don't want this to affect the way I support mum. I feel so sad, scared and lost. My mum is my best friend and I hate that she's poorly, I'm worried about how she will cope and I am unbelievably heartbroken at the thought of a future that may not have her in it. I am usually able to be rational about situations but I just can't pull myself together at the moment and I know I have to. I can put on my game face for mum but in private I feel broken. My husband is very much a bury his head in the sand kind of person and thinks if he avoids talking to me he won't upset me or just resorts to asking direct questions only about whats gone on or been said and avoids actually discussing anything difficult or that may cause tears. I realise that I have been super teary since I found out but he has actually sat in a room with me silently crying and blatantly ignored me! I don't think its intentional, I just think he doesn't know how to cope with me being useless, I am usually the one holding it all together. I just wanted to sound off and get it all out in a place where people may know where I'm coming from and may be able to help. I'm open to finding out about any resources or services locally (I'm in Manchester) for families, I want to support mum but I realise that I won't be much use to her unless I get a grip of my own emotions. Thanks in advance x

  • Hi,

    im so sorry to hear about this terrible news. When my mum got diagnosed with an agressive stomach cancer it hit all our family extremely hard. Especially because she was going to the GP for a year before the diagnosis complaining with symptoms that didnt obviously point to Cancer but we knew something wasnt right,( the type of cancer my mum had is notoriously difficult to diagnose) My mum was 57 when she was diagnosed.im the youngest of my siblings at 24, No one deserves this and i know from my own experience that you will think all sorts of things about why this is happening to your family and your mum, whether you have done something to cause this or if you did something different it may not have happened, please know that nothing you or anyone else has done has caused this. Its natural to feel lost, i know i and my sisters did when we found out, i felt like i was watching it all unfold through someones elses eyes. Like what is the point is carrying on, The advise i would give you is lean on your family and talk to your husband and explain that you want him to say things that might upset you because you want to get things off your chest even if its upsetting, your husband might even want to aswell but may feel like he has to be hard faced for your sake, my dad is a hard man and an old fashioned man and believes a man shouldnt show emotion, but under that hard face is another person that wants to let it all out, sometimes you just need to explain that its okay to say what needs to be said. I know your a nurse and you probably see similar things all the time and think " why cant i hold it all together like i do in work" but this is something that is affecting your own family and it completely normal to feel this way, theres no right or wrong way to deal with it,  just if the anger phase comes don't project it onto love ones, it never helps and they will be there to support you through these difficult times. Take time to speak to your mum, tell her your worries and let her tell you hers, sit with her and have deep conversations about the whole situation, it helps. I put it to the back of my mind a lot, and thats okay aswell, dont let guilt make you feel like you cant still have your own life because your mums going through this, she wouldnt want it. Take care of yourself. Take everything as it comes, 1 day at a time, as hard as it is, it does no good to think what ifs or to think weeks/months/years down the line and let it consume you.

    Any questions you may have, please dont hesitate.

  • hi I’m really sorry to hear this news. My dad passed away very quickly from lung cancer in Feb, he also had an underlying lung condition and was not strong enough for chemotherapy or any treatment. I can only imagine what it’s like to also have to cope with lockdown. I took comfort in trying to do small nice things for my dad to help, such as buying him his favourite cake to eat, getting him things to alleviate symptoms. He also didn’t want us crying, which is hard as that’s all u want to do! But I tried my hardest every time I saw him to put on my makeup and hold it together, I then collapsed in a heap when I got home to my husband. We didn’t have any support from Macmillan or anything as it was too quick, but I did phone their advice line re treatment and they were very supportive. Here if u need to talk x