Coping with initial hair loss and lack of support with Covid

I'm on day 10 of R-chop Chemo and I know my hair is getting ready to depart 

I'm devastated , but very appreciative my prognosis is looking good overall and know it's purely cosmetic - but still I can't imagine rebuilding confidence until I have sone reason able regrowth 

all head covers seem very 'not me' and buying a wig online seems like a disaster waiting to happen 

 

have ordered a few emergency cotton beanies - and trying them on left me inconsolable     I'm hoping to become a wallflower not someone in a bright turban or clearly fake wig - how do you just fade into the background ....
 

looking for a little advice .. 

what are people doing whilst wig shops are all closed down ?   
uk nhs - is the prescription thing worth doing ? ( I didn't think you got a voucher in the Uk like years ago unless you were in a low income criteria)   Anyone know who the nhs suppliers are ?  Does any contribution only count to acrylic hair rather than real ?    I've seen the nhs website but was after an experienced view 
real hair looks very expensive ( like £1k)  - is it worth it

I don't know where to start 

my scalp is now dry, my long hair feels like dolls hair , I know it's now a matter of days but I can't bare to cut it ..  barely brushing it in fear of losing any ( it looks so dreadful you'd wonder why I'm clinging on )   I never appreciated how this affects people until now and what a big  part of my femininity hair is .   I'm not the type to rock the look with a fancy turban and big earrings -  scared of even letting my family see me 

fully aware of how ridiculous I sound ! 

 

 

  • Oh good, I'm glad you found them. They do lots of nice colours don't they? 

    Yes I remember the clumps phase.  Very very upsetting. 

  • Hi Ruth.

    Thank you for your honesty. Makes me appreciate I'm not the only one that feels that way.  I have had chemo 3 times and with the coldcap managed to keep it but due to covid my next 3 chemo have to be without the cap!!!  I am devastated.  They said I would be in hospital too long!!! I've had to cancel my wedding twice so far this year and was hoping j would still have my lovely long hair

    All the best  x

  • Hi, looking at your photo my hair was a similar colour and length.  That's really unfortunate you can't have the cold cap for the rest of your treatment but even so, you may still not lose your hair, it seems people react differently. Have you set a new date for your wedding?
     

     

     

  • Tried 2 dates since being diagnosed and had both  cancelled so picked 5th June next year so hopefully have some hair by then and this virus is under control. Have cancelled hen and stag do's and honeymoon. So just a *** year all round. My gorgeous mother in law died if a brain tumour 3 weeks ago and my nieces best friend and family friend died this week of cervical cancer at the age of 25 so trying to feel positive is really difficult at the mo.   Hope you are ok  xx

  • I'm so sorry to hear all this, you really have had a terrible time of it and I can imagine it's hard to feel positive. I'm sure you and your partner are supporting each other through this this difficult time. x

  • I’m in the same boat as you. Started chemo 6th April, was warned i would lose hair and it would probably happen by next round(27th April) no one really explains what to expect. I thought I was going to get away with it to start with as just had a bit more lose hair than usual, / weeks in and got a brushful every time I brushed it. Then came the dolls hair straw matts and now my hair is ultra thin and I know there isn’t much left. 

    I don’t have the patience for scarfs and like you didn’t get chance to look at the wig thing before it all started. I too don’t know if it’s what I want and am still waiting for referral to come through 5 weeks later. 

    I too have the emergency beanies. I also order red a couple of these as fabric helps with head shaping

  • Thanks [@Bluestar79]‍   I'm sorry you are dealing with this too 

    ive just had my second chemo today and managed to keep a thin layer tied back ( I had to cover it in dry shampoo as a wash would have taken it all off ).  I'm pleased I got to today though without having to cover my head. ( 23 days since treatment )   My hair has felt dead for a good week or so - just awful and scalp really sore .  The hair care charity that was recommended we're really helpful and defo worth dropping them a note .

    I am going to look into the wig thing for sure and take some advise before buying a returnable one online .  I'm only intending to wear that 'out' so I jest need to come to terms with one of the head coverings around the house and at hospital  - just not sure how to do that yet .  I either look like a burglar or mystic meg 

     

    Wishing you the best of luck with your treatment and recovery ! ( and new hair growth :-) ) 

     

  • Funny enough I had my 2nd chemo last week

    I contacted the hair care charity but unfortunately their email went down at beginning of month and callbacks got missed so about 3 weeks behind on initial contact with them, they are sending some bits out but likely to be another 3 weeks before I get them (gonna be bald by then I think ) 

    Good luck with the wig hunt, I’m sure you will find what you are looking for. 

    As for the indoor/hospital headwear I totally get where you are coming from. Some days it gets to me and others I manage a cheeky chuckle.

     

    yesterdays one...seriously I have like not a lot of hair and it still decides to be greasy And needs washing?! 

     

    Keep smiling and all the best x