Do consultants lie?

I had breast cancer seven years ago which has come back in liver and bones. Consultant says if I don't have treatment I won't be here in November... but, she also said she thought I might well respond quite well to treatment and that if she didn't think that she would tell me to go home and enjoy my life. She'very blunt. She wants to put me on Paclitaxel, Pertuzemab and Tratuzumab once a week for eighteen weeks (rather than six Docotaxel once every three weeks). She said they would have to rethink if treatment did not work and either give different chemo or move onto Kadsyla. I'm scared treatment won't work and that I will not be able to tolerate such a long period even though a weekly dose is lower. 

 I would also like to use the cold cap but don't know how to prevent bald patches if cap does not fit. Very scared. 

  • So sorry to hear of your cancer return. Whilst i can only comment on the cold cap, i wish you all the best with treatment.

     

    Iv used the cap 7 times now with minimal hair loss.. few strands when washing and brushing. I ensure my scalp is soaking wet, sometimes taking over from the nurse, my peace of mind is better settled that way and i help tug it down to make sure im 100% happy with its position. Other than that, i cant offer much more support.

     

    Good luck for the future xx

  • Thank you. Lovely to hear you kept your hair. Take it you got through your own treatment okay?  Ceyenne

  • Pretty sure i had replied to this, but unsure where it went

    Im almost finished my chemotherapy, 3 rounds lefts so 3 more cold caps to battle through but so far so good and its worth it. For me, in the beginning, loosing my hair meant i was ill, something im trying to keep from my children, to an extent. Loosing it would have been hard to explain so on that side, im doing well xx

  • Hello Ceyanne,

                             l am sorry to hear your unwelcome guest has returned,and you have too fight once more.

      l was struck by the headline of your post, and the context of which would prompt you to write such a thing, and thought maybe you felt she was giving you false hope in order to make you feel better,but since you say she was very blunt and circumspect,maybe l have not grasped what you are trying to say.

       In my dealings with consultants l have found they are direct,try to state facts but allow for the inponderables based upon the their extensive knowledge built up over the course of their careers.You have to factor in your individual circumstances into the diagnosis and accept the degree of probability but not garentee that comes with it. l could not see a consultant putting their patient through a long term gruelling treatment regime unless they felt there was a good chance of success,and that the drug level adminstered was the minimum required.

      From what you write you have a number of alternative treatments should the first not produce the required result,which l realise can be both good and bad news in the sense of the potential battering to your body.l would expect you would be monitored and swiched at the earliest opportunity should the first choice not be having the desired effects.

       l feel you should put any concerns over your consultant misleading you for whatever perceived reason aside and concentrate on your treatment,reassuring yourself that the correct progression of progress is taking place.Good luck on your journey that all us survivors keep the understanding that one day we may have to face again,

                            David

  • Why would a consultant lie,  what benifit would it be to them. I found them very blunt upfront and honest, I for 1 liked that, no pussyfooting around.

    I think you need to put your trust in them I did and got the all clear, they can't give any one a100% guarantee.

    The can give you their opinion based on experience and facts.

    I hope you can maybe get more clarity, to put your mind at rest, wishing the best for you x

  • Thank you, David. You are of course right. I think I have sunk into a major depression the closer the treatment gets and can't crawl out of it. I feel like there's no way I can survive for longer than a few months given where my cancer is and therefore the treatment won't work.

     Are there any others on here that could help me? Has anyone had four or so years with liver mets that could write back? My friend has primary liver cancer that did not respond to chemo. He has had four years of good quality life because doctors gave up after his first two  chemo sessions did not shrink or even touch his tumours so they left him.

     Is it normal to feel so depressed?

    Thank you all. Ceyenne

  • Hi I have breast cancer returned in to my lungs and liver and kidney.i was diagnosed last year in May.I had a horrendous experience with my oncologist who send me to the early grave.I am still here.I am responding well with the weekly Paclitaxel.And I do think doctors lie.Because after diagnosis here i didnt believe here it was in my liver and kidney so I went for a private ultrasound and that was clear.

    So my advice is carry on with the treatment which offer you but dont listen any time limits or prognosis and dont even google it.I am still on chemo and feeling stronger and stronger.Last CT scan showed lung nodules shrinking and lump in breast untouchable.Of course liver and kidney clear.

    I used to use cold cap but it was too much.You have to put it on 30 min before chemo then you have to keep it on in my case 1 hour after chemo.So i lost the patience with it.before they put the cap on take 2 paracetamol.is freezing cold and can cause headache.

    I am still on chemo but my hair is growing back.I dont know how but its miracle.

    Anyway I hope your treatment will work.

  • No I don't believe they would lie, in fact they could be struck off if they did. My friend's mum was diagnosed with stage 4 BC aged 84, because of her age the oncologist said she could not have chemo and instead she was given radiotherapy and letrozole. The tumours shrank and the one in her breast has disapeared completely, she's still going strong 2 years later.

  • Can I ask you why you didn't believe you had liver and kidney spread? I have been told my liver is swollen by three different doctors so have no reason to doubt it. Many thanks. Ceyenne

  • Hi Ceyenne because 1) have no symptoms at all

    2) I went to have another scan not CT but MRI and ultrasound and it was clear

    3)and my onco was useful like snow in the summer and nasty piece of work

    Now I am seeing a different doctor and I am really happy with her.I am feeling so good if I dont have picc line I dont even know I have cancer.