Just diagnosed today Grade 2 Invasive Ductal

Hi,

I guess I am just looking to find someone who has been on or is just starting on this jourbey that no one really wants to take.

I have just been diagnosed this afternoon with Grade 2 Invasive Ductal Carcinoma. ER+/PR+ , but no results back on the HER2 or any idea of stage.

I know that my lumo is 2ccm by 1.2cm and so far looks to be well contained, no lymphovasuclar involvement evident yet which is good and my chest xray is clear.

I am seeing the consultant on Friday morning and my breast cancer nurse says that the treatment plan so far is a lumpectomy with a sentinal node biopsy which will probably take place next week as a day surgery patient.

Are there any questions I should ask that you who have been through it all or are going through it can advise?

It all seems relativeky straightfoward so far and I feel strangely calm after a week of waiting for the results.

When do they normal advise you of what drugs, chemp, radio therapy you may need?

This forum has kept me the right side of madness this past week so thank you to you all :)

xxx

 

  • Hi Sunshine,

    What diet are you following? I got the breast cancer cookbook. I will let you know if I find out anything else.

    x

  • I bought a book from amazon called the living kitchen - I'm not the best cook but even I can follow the recipes! And there's loads of information about nutrition and what foods are good during different treatments. It's really made me think about what I was putting into my body- I thought I ate quite healthily but now realised that I didn't! I've not heard of the breast cancer cookbook- I might have to get that too!! X

  • Hi JoJo

    i hope it went ok yesterday x

  • Hi

    Thanks ever so much for remembering!

    I've been quiet today as despite yesterday going reasonably well I have been having a wobbly day.

    I met my consultant yesterday and really liked him, if all goes to plan I will be having a lumpectomy, scheduled for either this coming Thursday or the following week then Tamoxifen and them Radiotherapy.

    My HER2 results are yet to come in so of course they might alter this plan, as might what they find post lumpectomy and sentinal node biposy.

    I left the appointment yesterday feeling quite upbeat but for some reason woke up this morning feeling like nothing would go right and was quite teary all morning.

    This afternoon my lovely husband made us sit outside listening to the birds in the sunshine, we had a big G&T and I cheered up a bit.

    I am just so scared all the time that things are going to take a turn for the worst, the plan at the moment I can cope with but I am so afraid it will change, I don't suppose I will lose the fear until the HER2 results and post lumpectomy pathology are in.

    How are you doing?

    xxx

  • Hi

    I'm glad it was a positive meeting yesterday- it's good that your hospital don't seem to be delaying surgery (I've got about an 8 -9 week delay due to Coronavirus! 
    It's funny how it hits you in waves and you can have good days and bad days and sometimes a mixture! I had a wobbly day the other day where everything seemed so overwhelming. I'm now on tamoxifen and I don't think that is helping my moods at the moment-  my poor husband doesn't know how I'm going to be one minute to the next(I do feel sorry for husbands/partner in all of this)  I also think it is that fear of the unknown and hopefully once the her results come back in and you've had the lumpectomy you will feel better about it all and will start to see an end to it all! 
     

    Take care and keep in touch xx
     

  • Hi Sunshine

    I live in rural Scotland and so far ( touch wood) we are coping OK with the Covid19 situation up here. My understanding is that all non essential surgery is cancelled but cancer surgery is still taking place. However, I am still worried that this could change anytime and my surgery will not take place.

    How are you finding the Tamoxifen is affecting you? I am due to start it immediately after surgery.

    Is your cancer HER2 positive and did that affect your treatment plan?

    All I know so far is that mine is very strongly both ER+ and PR+.

    Funny how we so quickly become accustomed to talking about things that a few days or weeks ago we were blissfully unaware of!

    Take care and Happy Easter!

    xxx

  • HI,

    I have the same as you only my grade2 is 22mm. I got my news last Tuesday. Its been a proper head wobble. Night time i find the hardest. IM awaiting what date im in for massectomy and lymph biopsy.

    WE are going to be ok chick, its early grade and its a new journey thats all..just a different direction for a while. 

    Im always here. xx

  • Hi Jojo 

    I'm finding the tamoxifen ok, although I do get quite tired and I feel achy when I wake up and that wears off after a bit but to be honest if they are the worst side effects I get, then I don't mind!

    Yes I'm HER2 positive, for me these results came back with the type of breast cancer I had so they worked it into the treatment plan, but then that changed due to surgery being delayed and I suppose it could all change again after the lumpectomy. It just feels as though there are so many unknowns at the moment! 
     

    Yes you're right, until a few weeks ago I had never heard of lumpectomies or er/pr positive. It all felt like a totally different language but slowly feel I'm beginning to get a better understanding! 

    Take care 

    xx

     

  • Hi Sunshine

    It's good to know that you are coping well with the Tamoxifen, like you I think that if I can be 'lucky' enough to get through this with just the Tamoxifen, whatever the side effects, and Radiotherapy following a lumpectomy I shall be extremely grateful.

    Do you have to have chemo at some point as you have HER2 positive?

    Take care

    xx

  • Hi

    The waiting is the hardest bit isn't it, particularly over the bank holiday.

    I find the morning the hardest time, I seem to be quite tearful first thing and then pull myself together a bit as the day goes on.

    I am very much hoping that I will start to feel better when my treatment starts in earnest, I'm not sure if I am having my op this week or next, but once that is out of the way it will seem like the first step on the road to recovery.

    My husband is very good at trying to keep me focused, like you he says that this is just a different course that's been plotted for us for a while but we WILL get back on track.

    Hope you are bearing up today

    Take care

    xx