Hi Newnanny i am the same i had BC 2 years ago and last year it returned in my lungs and liver and kidney.I have started weekly chemo Paclitaxel last year August and my last scan January showed that I my liver and kidney are clear and the nodules in my lungs keep shrinking and the lump in my breast is almost u touchable.I am on chemo break till next week Friday but I am having an onco appt so I hope my chemo will resume from next week.I dont want any delays because I dont want to start from 0 again when I am responding so well.

I hope your treatment will work too.

Denise

Hi Denise

Thank you so much for your reply and great to hear you are responding so well to treatment.  Can I just ask is your cancer Triple Negative?

Fingers crossed for your onc appointment next week.

Newnanny x

Yes I know how you feel - having TNBC mets is bad enough but in this current climate it is so scary.  You have filled me with hope though that your treatment has been so successful so far. I'm just hoping that starting on oral chemo won't limit my options later.

I haven't been able to find many TNBC mets ladies about and our prognosis/options are so limited compared to other types of BC mets.

Do you know if it's possible to private message people?  I would love to keep in touch with you to see how you're doing - but obviously only if you wanted to too!

Newnany x

Yes sure we can keep in touch.Its nice to chat with people in similar situation.if they would put me on tablets i wouldn't protest.The weekly trips for hospital and picc care really tiring me and now is really too.but I am a kind of person that i take the risk.

I have never askes for prognosis and they didn't tell me and I dont want to know because miracles do happen and some people live many years with mets.

I have send you a friend request.

Denise