Hi Tate and welcome to the Cancer Chat community.

I'm sorry about your diagnosis but please believe me when I say that you aren't letting anybody down. It's completely natural to be feeling this way as many of our members would agree and I'm sure some of them will be along soon to offer their support and advice.

I do hope some of our members with the same diagnosis will reply to you here but if you don't hear back then do have a go at using the 'search forum' option in the blue bar above and joining in on other discussions you find about this. Our members are very welcoming and helpful so don't be afraid of saying hello :)

Our cancer nurses are also available to talk to on 0808 800 4040, Monday - Friday between 9a.m - 5p.m (except bank holidays).

We're here for you Tate and know you can do this.

Kind regards,

Steph, Cancer Chat Moderator

Hi Tate

i joined this forum specifically to reply to your post. I know exactly how you feel as I was also diagnosed with triple negative breast cancer just 3 weeks ago. I made the mistake of googling this condition and scared myself half to death. however a lot of the info out there is out of date and treatments/survival rates are improving all the time.

I joined a wonderful Facebook support group for triple negative BC which is full of positivity and inspiring survivor stories. It really made me feel so much better. Not sure I can post a link for the group on this forum but I just did a search for it under triple negative breast cancer.

Not sure if you can private message on this site but if so would be happy to provide my email/tel number so we can be a support for each other? 
 

Hi thank you for responding I think I'm just feeling a bit overwhelmed. I don't have fb but I guess I could create an account. I'm bit old school with tech and feel so distracted since having the diagnosis. I feel selfish,  I feel like I need to sort my kids out and then it dawns on me I might not be doing any of the things I can do now coz of chemo. Think I need to throw this year away and start again. Definitely need some positivity I'm always cheerful even when I'm a little upset I never let on I'm down but this this has wiped the smile off my face I feel like it's taken over and I just want to grab the cancer and throw it out

 I'm trying to go out for a walk just to clear my head and we've been so vigilant with covid my kids hardly play in the garden as I'm scared of infections and being told sorry can't do your chemo as your rundown. It's too much and being in isolation anyway only to be doubly isolated with your fears ad anxieties that I never had before they have taken over my every waking thought I feel like I need to snap out of it and then I get a shrp pain in my armpit and I'm back there again. Sorry for ranting but I think I need to empty my head as I can't share it. Even my friends i love to bits but they dont undersatnd i just need to drop my guard a little just to get rid of this junk then maybe i can function. I end up making them cry and then I'm like I'm not dead yet I'm just sounding off feel bad for them. I'll search for the triple negative breast group where's it based ?

Hi

Aw it's awful feeling so anxious day and night particularly when you have small children to look after. My friends are lovely/supportive but the horror of it all is impossible to understand unless you have been or are going through it. I just keep thinking if only Covid was all I had to worry about!! I also felt guilty and worried about letting people down, I think this is a natural reaction but of course completely illogical! 

Have they provided you with a treatment plan yet? I was diagnosed 3 weeks ago and had the lump removed last week. I was also worried about delays to chemo etc but was assured patients like us will remain a priority throughout the current crisis and will not be put in any risk. I feel much better now treatment is underway so hopefully this happening for you also?

The group is called UK and Ireland Triple Negative Breast Cancer Support. Sorry should not have assumed you were on FB! I do think it would be worth accessing this group though as everybody On thereunderstands what we are going through and can provide excellent support/advice. 

Please remember this disease IS curable and we CAN do this!!!!! 
 

I just had my surgery on Monday it was cancelled initially as they didn't have any capacity for surgery but I got rebooked and they are waiting for the pathology before they decide on treatment. Which is chemo and more chemo i guess ...thank you you've been very kind and yes we can do this let's go kick cancers butt. BTW your right that fb page is fantastic I feel better for having gone through it. Thank you  x 

Tate, I'm an admin in the TN group mentioned in other posts.  I can promise you that TN is treatable and curable.  In our group we have ladies who are 19 and 20 years beyond diagnosis and lots are 10 years plus.  I'm only 4 years but never ever give up hope.  You can beat this x

I was diagnosed with triple negative BC IN February but only googled it this week and have really scared myself, will have a look for your facebook pages I need some positivity right now.  Thanks for sharing.

Hi everyone 

I am so pleased found this forum by chance 

after my first mammogram two days before 50 I got recalled for more tests then week later was told I have invasive BC and triple negative.  Scared also when read google but finding Macmillan nurses amazing.

so it is in my nodes too and found another tiny lump on breast from MRI so multi focal original lump is 24mm

i am having a weekly carbaplatin treatment and EC on the three weekly amd pre chemo picc line booked after HT and will be a gruelling six months. Massectomy will

follow after as triple 

has anyone else had similar 

I have two boys 7 and 11 jo xx

Yes just found out I'm triple negative,will be starting chemo soon very worried also x