Husband diagnosed with kidney cancer

Hello, last week my husband was diagnosed with kidney cancer. Due to the Coronavirus I was not allowed into the hospital so was unable to be with him when he got the news. On monday he had his kidney removed and biopsy of bladder. Again he was on his own as no visitors allowed in hospital. Thankfully he is now recovering at home. It's been difficult as there are questions I wanted to ask and husband has closed off a bit which is understandable.  Can anyone tell me if you are told at diagnosis what stage the cancer is at? Or after the surgery?

Thanx

 

  • Hi there ..

    Sorry you've not had reply, but think everyone has so much happening with this carona virus.. 

    Now I'm not medically trained.. just someone who's been through breast cancer , so I can only give you my opinion... I was told grading after they took a biopsy of my lump .. but it was only after my masectomy,  I got more info, after that was tested ...a few weeks later...

    I cannot imagine going through that now with no visitors... it is bound to take its toll , being alone .. so think he will be trying to sort out his feelings right now .. just hold his hand and let him lead the way .. the more room you give him the better the out come ... once he can sort things out, he may let you in more .. but he's probly in shock a bit right now ... 

    But you just being there, telling him, you'll just wait till he's ready, but your there if he wants to chat .. Will really help him ... I think it's harder watching someone you love go through cancer sometimes ..

    A cancer journey is a marathon, not a sprint ... so taking it easy now, will help you through ... sending you a vertual hug.... Chrissie x

     

  • Thank you so much Chrissie for your response, your kind words and good advice. You are so right that he will open up when he's ready and to give him time. It's all so sudden and new right now.

    Thank you and stay safe x

  • Hi there. Sorry, I'm a little late seeing this post and realise that things may have moved on now. If you haven't had an answer to this yet, I can tell you that, as a kidney cancer patient myself, you can't get a grade or staging until after surgery.  The tumour needs to go to the lab first to determine what type of kidney cancer it is (there are a few types) and how aggressive it is.

     

    You should ask for a copy of the pathology report and also for the TNM score. T = how far it's spread; N = number of lymph nodes involved (hopefully 0) and M = metastases or spread.

     

    There is another useful measurement called the Leibovich score, which gives an indication of his risk of recurrence.  Again zero is as good as this gets.

     

    If you have Facebook, I would really recommend joining the Kidney Cancer Support Network group which is for patients and carers. I was found in the wilds of the internet by a lovely lady from that group, seardhing for information when I was first diagnosed. She brought me over to that online community and it was the best thing I ever did in my cancer journey. All the information you need will be on there.

    P.S. It may help your husband to know that I am nearly 10 years since diagnosis and surgery. There are a lot of us long-timers out there - I hope this gives you a positive in this horrible time.