mastectomy and reconstruction advice

Hello!

I was hoping I wouldn't need to come here, but here I am, having learned this morning that I need a mastectomy for widespread DCIS in my L breast. Given the Covid-19 crisis I will have to wait 6 months or more (no worries, it's not likely to transform into something more invasive in that time). However, I was alarmed to find out that I will lose my entire breast. My boobs are only small and the DCIS is occupying far too much of my breast to make breast conserving surgery possible. My right breast is normal so they will leave it alone.

Can anyone advise me on reconstruction options? None of them look ideal. I have heard that implants have high failure/complication rates and don't look or feel normal. I am very sporty so I am also worried that if I have flap reconstruction from either L dorsi or rectus abdominus muscle that I will be left weak and unable to do the sports which I love (hiking, running, swimming, climbing, anything adventurous).

Are there any other intrepid adventurers out there who have had reconstructive surgery? How was it? My body image is suffering big time as I am slim and muscular and love being strong and agile. This has come as a big blow to me. I don't even feel like going out for a run...

As you can probably gather I am still reeling from the news.

Thank you,

Marisa (and Spook the cat)

  •  

    HI Marisa,

    I am so sorry to hear about your diagnosis. I have had a lumpectomy and a double mastectomy a year later. I just want to reassure you that losing the entire breast is not as bad as we all imagine it to be. I found it easier to recover from the bilateral mastectomies than I did from my lumpectomy.  I couldn't have reconstruction as, previous non-cancer related surgery had already spoiled the 2 usual donor sites.

    I had large breasts (44C) and didn't want to use implants for fear of further complications. Instead I make do with a selection of different prostheses for different activities. I can still swim, go to the gym, dance, etc.

    All of this is still new to you, so it is perfectly normal to feel as you do. It is such a pity that the Coronavirus pandemic is impinging on cancer scans and surgery, which makes your wait even scarier. However, you are fortunate that it is not likely to spread in the next 6 months. I am sure that you will soon feel better about this and, you will be back running again. You want to be as fit as possible for your surgery when it comes around. Have you been told what grade your cancer is and, are you being given any medication in the meantime?

    Do please let us know how you get on. We are always here for you.

    Kind regards,


    Jolamine xx