Scared

Hi, I am 44 years old and have just been diagnosed with HER2 positive breast cancer, after doing some research, I am very scared about my future and treatment. As its just newly discovered I still have to go for an mri. Doctor has said I will receive chemo. Is there anyone that can give me some advice. I haven't slept a wink all night. 

  • Hi, I'm sorry to hear about your diagnosis. It's a really scary time with lots of unknowns, it will get better though as time passes and you get clarity on your treatment. I turned 44 last week and was diagnosed a year ago with a very large tumour in my right breast and was told I would need chemo. I was scared but knew I needed to do it. After 6 rounds of chemo, a mastectomy and reconstruction, 15 rounds of radiotherapy and ongoing hormone therapy I got the call yesterday to say that my recent scan showed I was all clear.  
    Im not going to say it was easy. It was tough, but completely doable and you will find bravery and strength you never knew was in you. 
    what I would say is try to stay off google it will take you down a path of worst case scenarios, there are Loads of lovely people on here who I have no doubt will share their stories and offer support. 
    so I'm here, if you need to chat or if can help answer questions. 
    WL

  • Thank you so much for your kind words, I am still getting my head around it all. I have not yet told my parents. My Mum is herself currently undergoing breast cancer treatment, so to also get a diagnosis was a big shock. I am so full of emotions just now. Well done on your fight  against breast cancer, your bravery and words definately give me courage. I may take you up on the offer of further chats. Thank you so much x

     

     

  • Hi Kitty,

     

    Sorry to hear about your diagnosis.

     

    I'm 42 and was diagnosed with ER+. HER2+ breast cancer at the end of January.  It was really scary  and to be honest I found it really difficult to sink in that I actually have cancer....at times I still can't believe it.

     

    I did quite a bit of research whilst waiting for the results of my biopsy (I knew I had cancer as I had a FNA at the breast clinic and they look at the cells there and then) so had an idea of the likely treatment I would require especially the targeted treatment if HER2+

     

    I had my first cycle of chemo a couple of weeks ago with my next one due on Wednesday.  It really wasn't as bad as I thought it would be, everyone is different but I would say don't be scared of having to have chemo.  Just think about what the chemo is going to do which is destroy the cancer cells.  I swear my lump has shrunk already!

     

    The best advice I can give is take it one day at a time, that's what I'm doing.

     

    Take Care

     

     

  • Thank you so much for your kind response, I have decided to stop looking at Google and ask the doctors my questions next week as it was really scaring me last night, so much so I have been awake since 1am.  I am finding it difficult to take in, I have got so much going on in my head, lots of thoughts and worries. 

  • Hi Kitty111

    I too was diagnosed with Grade 2 HER neg breast cancer. The MRI will give more information as to your treatment. I have had surgery in Dec 2019 and now am on the 3rd of 6 cycles of chemo. It is a shock but you will feel better once you know your treatment plan. We are all on this forum to support each other so rant away when you feel like it.

    Wishing you all the best

    Silver

  • Hi,

    I found it helpful to write all the questions down that you are concerned about. Its so easy to forget once you are with the doctors.

    Silver

  • Hi Kitty

    I know exactly how yyou are feeling, I was awake at 3.30 this morning and when my husband gave me a cuddle all I could say was that I was scared. Scared of what is to come, scared of not being me anymore and scared of not being the same 'us' anymore.

    I think I too frightened myself by reading too much last night!

    I am 40 and yesterday was diagnosed with Grade 2 Invasive Ductal Carcinoma. ER+/PR+ , but no results back on the HER2 or any idea of stage.

    I am seeing the consultant tomorrow morning and my breast cancer nurse says that the treatment plan so far is a lumpectomy with a sentinal node biopsy which will probably take place next week as a day surgery patient.

    So, this morning when I got up I had a good look in the mirror, slapped on some make up and thought right, let's get on with this and just take one step at a time.

    I know a few people that have had breast cancer and have come out the other side of treatment well so why should it be any different for me. I have just moved into the loveliest house and have been so happy these past few weeks before bl**** cancer interfered so I am NOT going to let it spoil every day.

    I am sure this resolve will wobble at times but I am going to do my best. I will stop googling and reading cancer blogs ( terrifying!!) and just rely on the advice of my hospital team, and the support of the lovely ladies here.

    Chin up! 

    xxx

     

  • Hi, 

    I was diagnosed with invasive ductal carcinoma -ER/PR + and HER2 +  a couple of weeks ago. The worst bit, everyone said to me, is the waiting- and it is. Once I got my treatment plan, albeit an altered one due to Coronavirus, I felt a bit better about things - that's not to say I've stopped worrying!!  It hits me in waves, sometimes I'm absolutely fine, then all of a sudden the enormity of this hits me. The current situation really doesn't help matters either. I try to keep my mind busy and have re discovered a love of cooking. I'm now on tamoxifen and a lumpectomy in a couple of months time followed by radiotherapy. So whilst I can't really give you any advice, we seem to be at fairly similar stages so hopefully can support each other along the way. Take care xx

     

     

  • Thank you, I had an appointment with oncology yesterday and will start my first round of Chemo in the next couple of weeks, I have a visit to the ward first on 22nd and I have an MRI next week. I will have chemo for aprox 4 month, once a week every 2 weeks then surgery and possibly radiotherapy. Just now I am considering what to do about my hair, it is shoulder length and I know I will be devastated when it comes out. I can't get to a hairdresers due to lockdown, so do I cut it myself, or just leave it? So much to think about. I have stopped reading google and I actually slept last night.  I am slowly sharing my news with friends and family and coming to terms with everything in front of me. 

    Take Care and thank you for sharing.