Hello,

I am Andy.

I have had a Neuroencrine Tumour for 15  years given a 5 year break in the middle.

During this time as you will appreciate i have had most treatments including PRRT L90.

I would sat look at me you would not have any idea as i have hasd good people on the NHS being there for me at the right time.

The reason for my message is to offer assistance to anyone who has been diagnosed with NETS.

Due to awareness there is a lot more information on line as awareness is getting better.

You can find information on CRUK site and the NEUROENDOCRINE TUMOURS UK all with a wealth of information.

The ome vital point if at all possible is get your GP to refer you to a NET Doctor who understands it,

The cancer is a complex nasty cancer that can affect any age and anywhere in the body often with no idea you have it, Thr cancer mimics other illnesses like IBS.

There are new treatments coming on line as awareness is building.

If you need any information let me know and i will try and help.

Another good source of information is on You Tube search Prof Caplin of a London hospital and his greek Colleague who have excellent lectures that are full of information and help you understand NETS, The two know NETS inside out but there are others on You Tube.

Well enough fom Myself.

Brst Wishes

Andy.

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