So sorry you're going through this. Although I'm older than you, I too was diagnosed with DCIS in December 2018. I was recalled after my mammogram.

I had a biopsy which showed I had high grade DCIS. There are 3 grades.....low which they can take a wait and see approach.....medium and high which needs further treatment.

I had a lumpectomy in January 2019 followed by 15 daily sessions of radiotherapy over February and March.

I'm now cured and am on a patient led follow up programme. That means they don't call for me but if I have the slightest concern they are only at the end of a phone. I also have the reassurance of annual mammograms for 5 years. I've just had my second but am not expecting any problems.

What's important to remember is that DCIS is totally contained in the milk duct, is non invasive, is totally treatable and most importantly is not life threatening.

I think it's important to be led by your medical team. I totally trusted mine and couldn't have had a better outcome.

It's a difficult time for you and the waiting is the worst but with a 2 year old I'm sure you will be kept busy. Take the advice we are given regarding the virus to avoid and keep it at bay.

Wishing you the best of luck with your diagnosis and treatment. Someone else may pop up on here to reassure you.

Please let us know how you get on........Irene xx

Thanks Irene,

I think it was just the fact that I had built myself up to find out what was going to happen and totally prepared for it, to then be told that they had found these other bits and pieces on the mri scan that scares me.

I also found out my dcis is high grade which they hadnt told me at the last appointment. I totally understand I will need surgery...they have drummed that in to me, it's just the stress of waiting for tests and then another wait for the results.

I'm quite a positive person usually and had been fine with the original dcis diagnosis.

Thank you for replying 

Hayley x

I was diagnosed with high grade DCIS in both breasts. My diagnoses changed post op as they found invasive cancer among the DCIS, so went from stage 0 to stage 1. I also had an MRI to ensure they had got it all out and there was nothing else lurking. I was warned that the MRI will pick up everything in the breast but the majority of times these turn out to be benign. So I wouldn't be worried as it could turn out to be nothing.

I know how anxious this is for you but see these tests as possible life savers as you don't want them to miss anything, you'll want everything that needs to go, gone and that way you can get the right treatment and less worry as you know once finished you'll be cancer free. 

Try and keep yourself busy between appointments. Take care x

Thank you for your reply, I have my hands full with the kids so I'm busy busy busy x