Stuck in limbo

Hi everyone, 

its over a week since my mum was diagnosed with grade 2 invasive ductal carcinoma with a lump that is 13mm. My mum is super positive about her next step and just wants things to move swiftly and get the cancer out. It's great to see that she's so positive and over the next couple of weeks she will have a lumpectomy and a sentinel lymph node removal. Followed by 15 sessions of radiotherapy and hormone tablets. She has already planned a holiday for the future she is so determined to get her life back on track- I'm INCREDIBLY proud of her! 
 

I on the other hand, have up and down days. With a new baby to care for I have found things really challenging. I guess my biggest fear and uncertainty is whether or not my mum will be ok. I can't share this with her, I just keep reassuring her it'll be ok and offering to help with appointments as much as possible. I have learnt that I don't deal with uncertainty and I worry about so many things. This is my place to write these worries because I can't discuss them with my mum because it's her that needs the support and not me.

I worry about :

*Will the surgeon get a clear margin? 
*Will the nodes be affected?

*What the stage will be? 
*Will she need chemo? 
mainly - will she be ok?

 

I am looking for any advice please and experiences that can reassure me just so I can settle myself and offer my mum full support .

 

thank you 

  • Hi there

    I'm sorry you find yourself here but there are so many kind and supportive people on this forum that will listen. My mum had stage 3 breast cancer in 2008 and it had spread to 10 lymph nodes. It was grade 3 aggressive too. She had a lumpectomy, radiation, chemo and hormone therapy. She is doing fine to this day. She still takes the hormone therapy and aside from aches a pains from the hormone tablets she is well. 

    Once they have tested the lymph nodes they will be able to stage your mums cancer and decide on the best treatment. If it has spread into the lymph nodes then she will definitely have to do chemo. It's great that your mum is positive and she should be. Treatments for breast cancer have come a long way. It's ok to be scared. I'm still scared now all these years later but I try not to dwell too much because my mum is living her life and she is well and I am beyond grateful for that. 

  • Thanks for the reply. 
     

     I'm so glad to hear that your mum is doing well but I can imagine how frightening it must have been. So far my mum has been told that the lymph nodes appear clear on the ultrasound so that's good and she's very fit and healthy . I think the worst is waiting for the next part. It's like we know what she's facing but there's still more to be revealed. yes, I'm so pleased that she's positive and hopefully we will have a good outcome . Xx

  • Hi

    It's a very good sign the lymph nodes look fine on ultrasound. The dr could feel some of my mums swollen lymph nodes so it was obvious it had spread from the start. The unknown is very frightening but it all sounds really positive from what you've said so far (well as positive as it can be) I just hope I helped you feel a bit better about things. 

  • Yes you have, I really appreciate you giving up your time to support me. Thank you .

     

  • Hi, im sorry to hear of your mums diagnosis, but she sounds like a really positive person and that really  helps when  dealing with these situations ....we are going through the same thing and i can only tell you that breast cancer today is a highly curable disease with huge advancements being made to treat all types of BC, there are many women living many years after treatment and there is definately life after BC!...15mm is also quite small, do you know if her diagnosis is DCIS? which means it hasnt spread outside the milk duct?....., it does sound as if its very early stages as she is not having to have chemotherapy, but even if she did, while not a walk in the park, chemo is doable, believe me, its not as bad today as people think, her chances of cure are extremely good....please stay positive and just be there for your mum, its quite a road to travel, we are on this road too and its not an easy one, with ups and downs , but keep the faith and believe that your mum is going to be ok...all the best.xxx

  • Thank you for your response and I'm sorry to hear that you are going through the same thing. You are so positive and have offered me the hope I needed so thank you. My mum has invasive ductal carcinoma so they think it has begun to affect the surrounding tissue but the lymph nodes appear clear on the ultrasound. Yes it's around12/13 mm so it is very small. I am already so proud of her. The doctors have made it sound very treatable and said they aim for 100% success rate . So fingers crossed for both of us. X

  • Hey, 

    I have the same cancer as your Mum  grade 3 and my tumour is 3.5cm so I am  going chemo, then surgery and then radiation. My lymph nodes are clear and I am guessing your Mum's are as they are saying Sentinel Node Biopsy. 

    From a Mum perspective I want you to know 

    Will the surgeon get a clear margin? I guess so - they found that cancer so they will make sure of what they need to do
    *Will the nodes be affected? If they are not now, and mine haven't been in the last 3 months I would guess they will see what happens as they go and get the ones they need to

    *What the stage will be? It doesn't matter so long as they get it
    *Will she need chemo? Maybe, but if she is a positive person she will get through it
    mainly - will she be ok? Her hormones are feeding it so they can give her medication to keep it at bay and she certainly seems to think so if she is booking a holiday. 

    And as a Mum she must be thrilled about the new baby which will keep her going. But make sure you take care of yourself too, it's her having the treatment but you are all going through the worry.

    Big hugs xxx

  • Thank you so much or replying to me. I'm sorry you are currently suffering with cancer and I really value your response as someone who is currently in the process. Everything you say makes sense. I just have good and bad days. I have days when I feel positive and days when I just feel so sorry for her. Ultimately I know we are facing this situation and each day I try and accept it a little more. I always come on here to talk because I don't want to bombard my mum with my worries. So far the surgeon seems position and she said they aim for 100% success rate after identifying cancer on a routine mammogram like my mum had. I wish you the best of luck with everything xxx