Hi

I'm so sorry about your mother in law. It must be awful for you all. I dont have any experience Capox but I'm sure someone will be along soon with some insight 

Hi Elaine,

So sorry to read about your family situation. My father-in-law had vascular dementia and I know how stressful that condition on its own can be.

I was on EOX  is Capox (Capecitibane and Oaxiliplatin) plus Epirubicin. Of the three drugs Epirubicin was the most unpleasant. 

There are good descriptions of Capox at www.macmillan.org.uk/.../xelox-or-capox and at 

www.macmillan.org.uk/.../xelox-or-capox 

Best wishes

Dave

My husband also has cancer of unknown primary but they have not mentioned what stage. He was seeing thr GP for about 8 months. All his blood tests, scans, colonoscopy, endoscopy & x-rays were coming back clear. The tumors were found in his abdominal lining when they operated due to a suspected bowel blockage. 

He started CAPOX on 2nd March. He has 14 days of tablets after infusion. I'm not going to lie he has found it very tough. He is not a man who takes to his bed very easily. The first few days after treatment he was ok. He did have a tingling arm & cold sensitivity after the infusion but he was eating & working from his desk. After day 5/6 on the tablets he has been struggling. He has days where he feels better half sitting half lying in bed & he does work from there & other days he can get up to his desk. He feels exhausted quite a lot & is in more pain now than he was before treatment. The oncologist called him on Monday as the nurses had told her he had been having a tough time. She ddn't seem too concerned & said that unfortunately his side effects are due to the drugs but also the type of cancer he has. 

My main concern is that he has lost more weight (he had already lost 8kg before treatment) and he can't afford to lose much more. I was hoping that once he was on his tablet free days then he'd feel more like eating but so far it hasn't been the case. 

It has been hard watching him go through it all.