Just been told :(

So I went to the doctor last Monday to ask about something totally different. Was a locum doctor. She examined me, told me it was unlikely to be approved on the nhs and we would most likely have to appeal. 
Walked out thinking nothing more of it and I would save up and have it done privately. 
get a phone call on Thursday that they have an appointment for me the following day. Should of known then something was wrong that I was being seen so quickly. 
Turn up at the appointment, have a joke with the consultant that she is jealous of my nails, cause in her line of work she can't have them. 
She opens my file and says, ok we've had an emergency urgent referral from your doctor cause she thinks that you have cancer!!! 
huh what?!? Have you got the right file, that's not why I'm here at all. Nothing was mentioned or said to me at all. I was told you most likely wouldn't even see me. 
so told her why I thought I was there and she said oh well it doesn't sound like there is a problem at all. Let's just have a look. 
leas than 10 seconds and she tells me my doctor is right and there is a serious problem. I just totally broke down. Had to have a biopsy there and then. 
I don't really remember much of what was said to me, I was in shock. 
just before I left I said please be straight with me do you think I have cancer. She said yes I do. 
said it would take 2-3 weeks to get the results back, until then, and we know what we are dealing with she can't really say what will happen next and there are a few different treatment options. And there will be more tests / scans. 
ive been like a zombie the past few days, don't know what to do, what to say. Did the worst thing possible and googled everything. 
I'm at the really angry stage at the moment, with the doctor. I don't understand why she didn't tell me anything. Ok maybe she didn't want to say the word cancer to me, but she didn't say a thing to me, not even I think there is something else going on here. 
I've not had a single symptom, I feel perfectly fine, I wasn't even aware there was an issue. Yes of course I would of panicked, but I could of at least had those few days to prepare and know what I was walking into. Take someone with me to support me and to drive me home afterwards. 
Is it normal that a doctor does that and doesn't say a thing to you?? 
sorry I know I've rambled on a bit. I just don't have anyone else to talk to at the moment. Need to get my head around this and find out exactly what I'm dealing with first of all xx 
 

  • Bubbles how can they possibly 100% know you have cancer without any checks . I have cancer and it took a while before I actually got the diagnosis. You need scans , biopsies , bloods etc etc . Can I ask what they actually saw that morning to come back with their findings . It all sounds a little bit odd to me . And I can't believe that they have told you this & in this manner . X
     

    of course I hope you are ok bit it sounds like you are in shock . 
    hugs Ginny x x x

  • It's my vulvar so I'm assuming by looking at it she knew. 
    I originally went to the doctor cause I had a bit of extra skin, it's been there for years. I first noticed it after the birth of my son who is now 20, bit of a traumatic birth got a lot of stitches. Never really bother me before but the last couple of years it had got a bit bigger and it would itch from time to time. There was a large sore at the top which was quite deep and she showed me and said about the white dots that she could see. 
    I just put that down to when it would itch and with my nails I had made it worse by itching it. 
    maybe in my shock I misheard her or something but I think I'm sure of what she said. Guess I will find out in 2-3 weeks time. 

     

  • Bubble I know that this is going to make you so anxious . Two weeks is such a long time to wait . I think you should make an appointment explain to the receptionist how and what you have been told and that you are not happy and you want to make sure you heard things correctly. Absolutely without doubt they cannot I believe say you have cancer with all the checks in place . It's so irresponsible of them . 
     

    hugs Ginny x x 

     

  • Maybe it was me that misheard what she was saying then. 
    I know she mentioned VIN to me and she said I had that. And she explained what it was to me. 
    never been though anything like this before. 
    Although has made me feel a bit better cause if they don't ever say that to you then it must of been me that heard it wrong. I'll hold on to there is a a chance I don't actually have it. The VIN I can handle it's like a warning sign, I'll have to be monitored but it's a lot easier to deal with. 
    for me the first thing I looked up is how long can I survive. I've got 2 small kids I'm only 38, and there is no one that can have then. Again probably not the right thing to do, but it was the first thing I wanted to know. 

  • Dear Bubble 

    im glad you have calmed down a little. You are so young !

    I would take someone with you to your next appointment so at least you have two pairs of ears . We just can't take all the information in , even when it's good news . 
     

    x x x

  • I rang the doctors and I have an appointment for tomorrow at 11.20am 

    She said they have received an email from the consultant and she will go through it all with me tomorrow. 
    So I will be a little bit more informed then of to what actually is happening and not have to wait a few weeks to find out. 
    still waiting to hear back from the practice manager about the other doctor that I saw and why she didn't say a thing to me at the appointment and led me to believe that I was going to be seen for something else. 
     

    thanks for replying to me, it has made me feel better xx 

  • That's great bubble . I'm glad your going tomorrow. 
    keep me posted x x 

  • Good luck tomorrow. I just stumbled across your post (bcos my

    mother is having tests for cancer and I'm petrified) and you

    sound really lovely and haven't been treated well by your doctor so I just wanted to say I'll be thinking about you!

    xx

  • Bit of an update for you. 
    so just back from my doctor. The other doctor I saw didn't put in an urgent referral for me. She did put in for just the cosmetic side of it. As she said they did reject it. It was only when another doctor picked it up and said actually I think it could be something more serious that it then went back as an urgent referral. 
    they did say I should of had a call to explain what was happening and she couldn't apologise enough. 
     

    so in regards to the cancer, I did mishear her or spoke to her and what came out of my mouth was not what was in my head. 
    I though I said do you think I have cancer, when I'm think it's more likely now I said it, and the consultant she yes she does cause she thought I meant VIN. 
    Going by what what written in the email to my doctor the doctor does suggest that's it's pretty likely I have VIN and she thinks it's only VIN 1, which isn't that bad, depending on the results I could need no surgery at all and they just give you a cream that kills the cells. If not and to be on the safe side they do surgery I'll be in and out and it's not a huge amount they will remove.  I will have to be checked regularly as there is a high chance it will come back and could turn to cancer. 
     

    so I had a brief moment of phew it's not that bad actually, just in my panicked and not thinking straight head I got confused. So glad now that I was advised here to go and actually speak to my doctor. 
     

    however then my doctor did say we have just had the results from your smear test. I have HPV and something else beginning with a C that I can remember now. It's not colposcopy that's what she says I have to have. 
    I asked a friend and she said she thinks it's something to do with that the cells are abnormal already or something. I've not actually had the letter yet about that. 
     

    and the doctor did say as soon as they had the results of the biopsy she will ring me cause they will get it before I do. 
     

     

  • That's great Bubble 

    lots of people have the HPV virus so don't worry too much about that . It seems that they are on top of everything at least . So try not to worry . X x x