Hi Paddocks and welcome to the Cancer Chat forum

We're so sorry to hear of your diagnosis and to hear of the stressful time that you are currently going through.

I know many on the forum can relate to how you're feeling and will be more than willing to offer their advice and support and you are more than welcome to give our nurses a call. You can reach them on this free number 0808 800 4040, Monday to Friday 9am to 5pm.

Best wishes

Matt - Cancer Chat Moderator

Hi Paddocks,

I'm sorry to hear about your diagnosis. I am in a similar situation, Inwas diagnosed with metastatic breast cancer to lungs and bones in December. I'm having chemo paclitaxol and antibodybtreatment as I am triple positive. 
I don't have young children (i have a 25 yr old), but it is still difficult to comento terms with. I have adopted the approach of not thinking about it and changing my diet and meditating. However it is still very difficult. I think as time goes on it gets easier. 
Are you just on hormone treatment and bone strengthened no chemo? What type of cancer is yours, mine is triplenposotive?

I have read that where there are only small amount of bone mets, as in your case there is a very good chance of very long term survival. In cases where the mets are only in a couple of spots in the bones it is a better outcome than where spread to other organs. I hope that is encouraging, but I know it is very difficult. 
 

kind regards

Sarah

Thanks Matt.   

Thanks Sarah, not sure when you say triple positive, what that means.?

I've edited my post re ibrance, that is the chemotherapy drug....

Yes I suppose I am lucky that for the moment it's not spread to any organs,, but it doesn't help my thoughts on the future are very from...

I've been told by my oncologist, that the only way forward is to be positive, but I just can't get into that mindset...

Hi Paddocks, 

how are you doing? Have your thoughts slowed down a little? I hope you've found some stillness and calm

in your mindset - be good to hear how your treatment is going. 

Hi there Mandy, 

I'm doing ok, thanks for asking.. still receiving my monthly hormone injections, so nothing has changed there.  .

Being on lockdown, with 2 young children hasn't given me much time to think about myself .  I do occasionally think of the future, and of me not being around, and it breaks my heart, especially spending so much time with them over the last 13weeks.    

I'm due a CT scan in July, so will see how that goes, hopefully there will be no progression, and if there's not, it will keep me going for a few weeks. .

I've been on anti depressants for a while now, but think I really need to see GP, feel they're not  helping me. .,..

Have you gotten your CT results? Been following and praying for the best for you. 

Will keep you in my prayers. Thank you for your response. 

thank  you so much need al  help i can get.  Last week i had  3 hrs  of cyberknife radiotherapy to the tumors. Had to wear a special mask to keep head  very still . It went ok. Staff amazing and put cds  on for  me. It went fast.  Oncologist tues to find out next step. I hope ur  keeping  well. X

Hi,  i was diagnosed with metastatic breast cancer in November 2020 , so not that long ago really. I have a 6 year old so i know exactly how you feel in regards to the future. Mine started in the right breast and has spread to my spine, hip, some small ones in my liver, rib and shoulder. I was treated for Fibromyalgia for a year by my GP and was on Amitriptyline. I complained of the pain and my dose was put up , i had asked for an MRI but my dr said he was nearly 100% certain it was Fybro and reffered me to Rheumatology. I ended up in hospital for 2 weeks at the end of October and was diagnosed with breast cancer beginning of November after CT scan and MRI. I then had a Nuclear bone scan and found it was in my bones and thats what was causing all my pain. It had got to the point that my partner had to try to get me up out of bed bacause my back hurt so much.

I am on Ibrance - type of chemo therapy , Letrozole hormone blocker dailey , monthly hormone injections and pain killers including morphine. I was going to have an hip operation but they decided to wait . I have had  CT planning today to start radiotherap on my spine next week and also going to start the bone builder injections, it was delayed because i was going to have surgery on my hip.

I know from my last CT  about a month ago the treatment has redused the tumour in my breast and my liver x