Just diagnosed

Thought I'd better join this forum as I was diagnosed with cancer on the vocal chords last Thursday. I suppose I'm feeling a little angry with the NHS locally for failure to follow matters up in 2017 when I was referred to ENT for suspected throat cancer. I was given an appointment within 48 hours. Had the camera up my nose and down my throat and told there was no evidence of cancer. This saga continued with visits to the doctors on three other occasions because of the loss of voice, until I was referred back to ENT and on 22 Jan this year  they found something needing further investigation. A biopsy was taken and this is now where I'm at! I've had ct, mri and ultra sound scans. Waiting for the telephone call this week hopefully to let me know what they propose doing with me.

Clearly I'm at the start of the journey and am hoping it's been caught in the early stages, but suspect that might not be the case because of the delay diagnosing it teferred to above. 

  • Hi Centaur,

    This all sounds very familiar. At 69, fit and healthy I was eventually diagnosed with cancer on the vocals cords probably twelve months on from noticing the symptoms and following visits to the gp, ent consultant etc. The biopsy produced a grade three cancer diagnosis with options of radiotherapy and chemotherapy or surgery.

    I selected the surgery having listened and questioned two teams, oncology and surgeon,  it was nine hours plus l.p. with recovery of three to four weeks. I was discharged after fifteen days. Post op biopsy proved inconclusive, solution was thirty sessions of radiotherapy with two to include chemotherapy. I'm not going to lie, this was tough but I got through it.

    My diagnosis was January 2019. The op. was 31 Jan. radiotherapy and chemo started end of March. One of two hiccups along the way but I was back on the golf course playing 18 holes by June. It took a bit of time and patience but I eventually put a good bit of my weight back on having dropped from 13 stone 4 pounds to 10-10 during the process.

    Prognosis looks ok, stats. 70% get at least five years, 60% ten plus.

    Keep positive throughout even when the going gets though, you will not be the first to have gone through it and you will not be the last.

    One final bit of advice, do look to blame anyone just move on and be positive.

    All the best.

    DT.

    Hope this has helped.

     

     

  • Thanks for the reply DT, it's much appreciated. I'm not looking to apportion blame as that would be a waste of precious time. I am however determined to come out the other end having beaten it! Thanks again. 

  • Further to my earlier reply one additional important comment I omitted was to wish you all the best for the future.