radiotherapy side effects

hi im anna, im 17 and i have an ovarian tumour

i start radiotherapy in just over a week and im really nervous, i have an ovarian tumour so radiation in this area is risky but im unsuitable for chemo so this is my best option. i was just wondering if anyone has any advice on side effects/ what it feels like to have radiotherapy, will i still be able to go to school and work after? Do i need to inform school & work about the radiotherapy?

i know i should be asking my consultant this, and i will but i dont see him till thursday and i just wanted peoples personal experiences because i know it affects everyone differntly.

  • Hello annahops17

    I'm really sorry to hear about your diganosis and well done for coming on to the chat and  i hope that it helps you.

    i have just finished 3 weeks of radiotherpay for breast cancer and for me it was very straight forward. 

    The first appointment is usually the longest . You will have a scan and they will measure the area that will be treated. All the staff i met over the weeks were very caring and supportive and talked through all the steps.  

    For the rest of the appointments they were very quick. At the  beginging the staff , usually 2 , will set up the machines and will check all the measurements again.   the  treatment takes a a few minutes,  lying on a scan/x-ray table,  and it is over very quickly. The scanner and machineswill make some noise, the staff are not in the room with you but watch you through camera's and you can call them at any time if you need to. I felt nothing at all until the final 2 days when my skin was a bit tight, but nothing significant.

    I did feel tired on some days and sometimes a little emotional and i believe this is not unusual, but it didn't last for long. I'm sorry i don't know if there are any specific cautions for ovarion treatments but they will tell you in your coming appointments

    They do advise that a week of more after treatment you can start to feel fatigued which is now the case with me. I have been advised this will settle after about two weeks.  

    My advice would be to tell school and work because it will help them support you if you need to have time off. I work and took the whole time off, other people work while going through treatment, once you have some more information you can think about what will work for you.

    I found some good informative NHS videos on u tube that show the scanners and explain the process, that helped me, you may want to have a look.

    The teams are very experienced and will take very good I wish you all the very best with your treatment

    xxx mary 

  • Hi Anna , 

    i was diagnosed with cervical cancer in July I had stage 2 & had chemo and chemo rad every day for 6 and half weeks .. I know your probably very worried about what lies ahead but don't be , rad isn't scary .. it's the unknown that's the scary part once you know what's ahead of you you'll be ok , I was like you and didn't know I had an image of sitting in a small chair and a sting light beaming down on me I was so wrong ! You will lie up on what looks like a scanning machine you don't go under anything the parts of the machine work around your body delivering the radiation to the area .. it lasts a very short time the longest part is making sure your aligned properly so it delivers to the exact spot they are treating .. don't be nervous honestly ... bring your own dressing gown as you'll have to get changed into it before you go in .. i found that the radiation treatment made me very tired it would hit me within 15/30 mins after I'd be exhausted and need to sleep it comes with side effects but the team will tell you all about that , don't be worrying thou ,, good luck & keep strong x