Stage 4 lung cancer

I just need a bit of advice please.  My beautiful mum has just been diagnosed with stage 4 lung cancer with liver and lymph node metastasis, the whole family is heartbroken, consultant said it was inoperable ant that there is no treatment that will cure it.  Mom is due to have a biopsy done on Tuesday but does not want this procedure as she had a very bad experience when they put in a chest drain last week - she is also saying what is the point as there is no cure- does anyone know what would the pros and cons of this procedure be and also I know there is a poor prognosis, but does anyone know how long we may have left with mum, I don't want to miss a minute of the time we have left.

  • Hi I'm sorry to hear about your mam, I was diagnosed with stage 4 lung cancer and metastasis in my spine back in dec 2018. I had a biopsy and an ebus done at the time, I found the ebus awful as I woke during procedure. I sword id never have it done again but looking on now I would. Doing the biopsy helps to see what type if cancer you have so decisions can be made on type if treatment. I was given two lots of chemo with a new immunotherapy drug. I've just found out off my latest scan treatment isnt working not good when I have 2 boys to live for. I've had a year so far and I plan on more, I find looking for the positives to things help and not giving in to the cancer. We are worth more and so are our families. I've been accepted for a cancer research trial and I'm hoping for the best. I know your mam has more metastases than me but we have to look for positives. This time last year i thought I'd be dead by xmas but after treatment I'm currently better than i was. I hope you get many more years with your mum. Treatments are changing all the time so fingers crossed.

  • Thank you so much for your reply, I am so sorry for your diagnosis and hope that the clinical trial goes well and that you have a lot more time with your family.  I agree remaining positive and hopeful is the way to go and I will share your story with my mum and family xxx

  • Hi there, because there is no cure doesn't mean that she can't be helped, that is why the biopsy is needed to confirm the situation and discuss a way forward.  My husband was diagnosed in 2017 with stage 4 lung cancer, nodules, not operable but we've had chemo and radiotherapy and today, as the cancer has grown again and nodules found in his liver we've been offered immunotherapy and more radiotherapy and we're taking up on that offer.  So it's hard to stay positive but help can be offered although it's Mum's decision.  It's traumatic when you have had a bad experience, my husband hated the biopsy and would never have it again, without it though we wouldn't be three years on.  Good luck,  Carol x 

  • Thank you for your reply, mum is 73, has rheumatoid arthritis, fibromyalgia and several other health conditions so I can understand why she is worried about having the biopsy and none of her dr's are doing or saying anything to convince her of the benefits of having the biopsy, it feels like they have written her off already - I am from a nursing background and I like to know the facts don't don't want to make mom do something she doesn't want to do xxx

  • Hi Dear!

    I was diagnosed with stage IV Lung cancer back in 2015!! Theu did not operate as it already had spread to lymph nodes, i had  biopsy done so they did know it was NSCLC, then i had chemo it didn't work, then immuno therapy, an it worked. I can now life a good life since nearly 5 years!!! I will may not be fully cured, but so far i life!!!

    Don't give up hope yet!

    Pet