Hi everyone and thank you in advance for helping me sharing your experience and comments.
I am 36 years old, and just been diagnosed with an high grade DCIS.
Many relatives had cancer on my maternal side ( both my mother and my aunt, my mother's sister, had breast cancer in their late 50's, my mother died of a secondary bones cancer). For this reason I have done the DNA test, and I am now waiting few more weeks for the result.
I spent the last months, from August 2019 to try to find out the reason for a small blood discharge from my right nipple noticed only once by coincidence while having a shower, I have done many times eco and biopsy, but nothing never came out and everything seemed to be fine. In october I have done a cytologist test on a sample of blood, and as result it came a C3, atypical probably benign.
I had a lumpectomy done in November 2019 as doctors thought I had an intraductal papilloma, but they found instead it was a DCIS of about 2 cm. After that, a mammogram showed an area of about 10 cm of microcalcification, and a stereotactic biopsy confirmed it. The consultant booked me in for a mastectomy, plus they will take the sentinel linfhonode for testing.
I have asked for a double mastectomy, even if my left breast it seems to be clear, and the consultant referred me to a psycologist.
I do not have children yet but would like to have at least one in the very future, always thought I would have breastfeed my child, but I have asked for the double mastectomy to try to stay safe. I am aware that a diagnosis in young age plus the familiarity could increase a lot the chances to get again cancer in future in a more aggresive way as well, and this is the reason of my decision. I have been lucky already to found my cancer at a very early stage, and do not want to risk thinking about the future.
I am not probably going to be positive to BRCA1, as recently found that both my mother (few months before passing away, nearlyl 10 years ago) and my aunt both did the test and were negative, but I do think we got some other kind of mutation that is still not known.
Did anybody, with no BRCA1, do a bilateral mastectomy in young age, even if one breast was fine?
Thank you, Antonella
