I have 6 cycles of fec t then herceptin for  a year. Mine is her2 positive x

Trying not to get too depressed. I have friends saying 'Im off to Barbados for 3 weeks' and 'going to theatre, night out in London' and feel like life is passing me by and will do for the next few months at least.

I find my garden therapeutic and I went buying at a Antique Fair and a friend coming over Saturday, so all these little things make life a bit more bearable taking my mind off this Cancer that has taken over my life.

Mouth ulcer today and hoping I can get hair cut appointment today as all this hair falling out is not nice.

Next chemo a week today, but 2 hospital appointments and a blood test before.

Silver x

Looking for some positivity in amongst this black cloud that now sits above me. Diagnosed DCIS April this year. Lumpectomy 26/05, when removed 2.5mm invasive. My whole world fell apart! Totally different ball game, went from pre cancerous to invasive. Anyway, due to Covid, delay in lymph node sampling. I’ve had to wait 6 weeks, op due 24/07 so just 2 more weeks now. The nurse keeps saying it’s tiny. Nothing untoward appeared on US but it’s gold standard to check nodes. I’m so worried, if it’s spread. Now confirmed HER2+ also so poss chemo in the mix. I’m so scared. 

Hello whitmic4, try not to worry I am sure if it has gone into your nodes, it will only be a couple and would I be right to assume they are removing your nodes on the 24 July?  I know you must be worried it's the not knowing.  Unfortunately there is nothing I can do to help with the waiting game, it's the hardest part.  I felt once I knew what I was facing I could deal with it.  I am sure if it had spread anywhere else in your body it would have been picked up on the scan.  Trust in the team you have looking after you, they really know what they are doing and will look after you.  Take each day as it comes, try not to think to far ahead.  If you need chemo, it's not the end of the world, you will get through it and remember you are not alone, there a lots of people who are going through it or have been through it and you will get through this.  Sending lots of positive vibes your way... and here if you want to chat any more x

Hi

as I’ve been told due to the invasive it’s standard procedure, they wouldn’t have sampled prior as they understood it to be pure DCIS. This is a check. I’m just so worried, googling everything. My BCN will calm me down then within an hour I’m right back in panic mode! I feel so ill with worry. Thank you for replying. 

Try not to google stuff, it just sends your mind into overdrive... have you got any family support or friends supporting you?  Have you tried getting some calming tea - sounds daft I know, but anything that might help calm you or taking a long bath with calming candles.  Also, would it help to watch something on TV/Netflix to try and take your mind of things?  Go out for a walk - that was my salvation to be honest... worrying like this is not going change the outcome, it will only make you poorly and the outcome might be good news.  I wish there was something I could do to help you more... unfortunately you have to dig deep yourself and try and stay positive and strong until you know more.  Keeping busy would help take your mind away from worrying x

hi charliebucket

ive just come across your post and was diagnosed in december 2020 how are you doing if you dont mind me asking ?

Hello Westieruth,

I was diagnosed end October 2019. Its been a tough time but 17 months down the line I'm back at work. Still under the care of the amazing hospital that looked after me for annual mammograms and appointments but doing ok. What's your diagnosis? I had a 2cm lump and 2 involved axillary lymph nodes. I was her2 no hormone involvement. I had chemo upfront then herceptin and perjeta and then 17 herceptin injections after which finished last month.

Take care

Julie x

im so glad youve replied julie because your earlier posts sound just like i feel i had a tough 2020 and it wasnt covid 

feb 2020 diagnostic mammogram just showed fibrocystic breasts so had cysts aspirated

terrible feeling of doom all year and consistantly worrying about my health

boom thought i had another cyst right breast no her 2 er positive cancer 3 nodes involved 3,7 cm

diagnosed 22/12/2020 feel terrible have been taking diazepam 

keep thinking im going to die 

plan had four treatments of 18 chemotherapy

then surgery then rads then adjuvant 

ruth xxxx well done julie