Just diagnosed with her2 positive breast cancer - terrified

Hello

I was diagnosed 3 weeks ago with her2 positive breast cancer with some lymph node involvement. I've had ct and MRI scans. Having a breast clip fitting next week then chemo will start. I've been utterly devastated as I had no idea and disnt feel any symptoms. My tumour is 2.4cm. I've been depressed and signed off work as I feel I've lost control. I cant get my head out this blackness. Please help xxx julie 

  • Hi Julie

    Sorry to hear your news, it's no news any of us expect or wish to receive. Sounds like they're on it like a scotch bonnet (sorry a phrase I often use)....that is good. Research and treatments are incredible today compared to years before.

    I understand and appreciate your level of worry and anxiety, especially as things seem to be out of our control. I've been told I don't have a good bedside manor but I will do my very best to offer you any support here I can.

    Important I found....don't bottle things...if you feel like shouting and screaming then do, I did in a public car park after receiving my diagnosis (didn't care who was there and who saw me). I shed a few tears then got angry and frustrated which led me to wanting to seize this pain in the *** disease by the jugular. It made me want to fight it so much in the best way I knew how which was ensuring I had all the facts and answers, this helped me face it head on.  

    It is hard to stay positive, there are going to be good days and not so good days.  Big hug coming at you Girl, you got this !!!!

    Here anytime if you need to vent or chat xxxxxx Ruth.

  • Hi Julie, I was also diagnosed 3 weeks ago. I don't have a treatment plan in place yet, everything is taking so long. The waiting and accompanying dark thoughts have brought me mentally to my knees. I'm here for you. I understand the deep panic and anxiety. I've been taking Xanax, clonopin and something that starts with a Z to help me sleep. I'm at work right now but can't get anything done. I will seriously do whatever I can to help you because this is the WORST! 

  • I'm taking sleeping tablets as well. I'm feeling suicidal sometimes. I'm terrified and cant get my head round it. I'm utterly devastated. What's your story? 

    Xxx

  • My mom was diagnosed at age 33, in 1978. She went through hell for 13 years until she died when I was 16. My worst fear was getting the same disease and suffering in front of my kids. I'm living my nightmare. I was getting screened all the time, I had a scare with LCIS 6 years ago and had a lumpectomy. I had an MRI in Sept, that's what caught this cancer. I'm furious that it took 2 months to get my MRI results. I changed doctors over this. I have been feeling suicidal as well. Don't do anything crazy today. I promise I won't either. Do you know what is triggering the worst of the anxiety? Mine is a sort of Ptsd from the things I saw in childhood but also the everythingness of it. It takes up all the space in my brain, there is no room for normality or happiness. It's exhausting  Tell me more about you

  • No family history of cancer at all. Happily getting on with a lovely life. Went for a routine mammogram and was recalled 8th November. Biopsy,   scans bloods etc. A week later they told me. I collapsed. Not been the same person since. I'm depressed suicidal and terrified. They seem confident they can sort me out but after watching 2 friends die of breast cancer over the last 10 years, I'm not convinced. I'm so frightened as I'm sure you are. I'm so sorry you lost you mum. I dont know how you cope with that.

    What type of breast cancer do you have? Xxx

  • I have hormone positive HER2 neg, invasive lobular cancer in my left breast. I still need to get the onco type test. Im supposed to get a call from my new surgeon tomorrow with some sort of plan.

    What is your family situation? Kids, partner? I'm going through a divorce and I moved here to rural Ireland from California 18 months ago. 

  • I'm married (second time) 2 amazing children from my first marriage. 2 beautiful granddaughters. I'm now 55 and felt everything was perfect.

    I live in a village called bottesford in Nottingham. My brother lives in Ireland in a place called meelick county roscommon.

    My treatment is chemotherapy first then OP. My tumour is 2.5cm but because there is activity in my nodes they like to zap it first to prevent spreading,  well that's what they say. My head is constantly Foggy and I dont think I want this feeling for long as its making me very poorly.

    Let's be there for each other xxx

  • I had a little cry reading that. It sounds like it's the shock and the change from life going really well to being completely turned upside down that's got you in this state. You need some good news, even a tiny shred to lift you out of the fog. There's only so long your brain and body can maintain this level of anxiety, you will calm down a bit. You'll get a break. I'm here xx

  • All I want is to survive but I feel too weak mentally at the moment xxx

  • Of course you will survive, and so will I. We just have to figure out a way through the ****storm we are in right now. If you've taken some time off work are you alone during the day? What are you doing now?