Cervical Cancer-Hysterectomy

I’m not newly diagnosed in the sense that my first diagnosis of stage 2b cervical cancer happened last year. I was successfully treated with chemotherapy and radiotherapy and my scan 3 months after the end of treatment showed no evidence of disease. 

I attend 3 monthly check ups, and in October this year my consultant identified an area of concern he wasn’t sure about. I had an mri scan, petscan and biopsy under general anaesthetic and yesterday received the news that there is a small piece of residual tumour which is growing again. This is my “new” diagnosis, hence posting in this section. I cannot have more radiotherapy, but my consultant is prepared to operate now, whereas this was not possible when I was first diagnosed.

So...I am scheduled to have a total abdominal hysterectomy with bilateral saplingo oophorectomy on 7th January where they will remove my uterus, cervix, ovaries and Fallopian tubes. 

I wondered if anyone else has had this surgery following pelvic radiotherapy? It’s not too common and does carry a higher risk than a similar operation carried out on a woman who hasn’t undergone radiotherapy. I’m happy to accept that risk in an effort to be rid of this, but I’d be interested in hearing from anyone who has had this operation. I’m expected to be in hospital for about 3 nights afterwards I understand. 

 

 

  • First thing I would say is that there is no reason to assume that you would get cancer on the basis that there is a history of cancer in your family. Not all cancers have a genetic link, and often it's just the luck of 5he draw. And it's way too early to be having thoughts about leaving your children!! 

    It seems it might be very difficult to get rid of these negative thoughts if doctors and clear test results are not enough to persuade you that you don't have cancer.

    I'm really not sure why the thought of advanced cervical cancer would have come into your head? In my experience, having gone through advanced cervical cancer, this would have definite ongoing and worsening symptoms like bleeding and pelvic, not abdominal, pain. In my case I'm talking about being doubled over in pain, not relieved by over the counter medication.

    It seems that your fear is cancer, because you've leapt to that conclusion thinking it might be vulval cancer and now cervical. If I were you, I'd try and get some help with your anxiety because it's so sad to see someone with 2 young children being consumed by these thoughts.

    You say you've had multiple dr appointments, but I'd suggest that you make another one to see someone to discuss your fears and see if they can help you with your anxiety or a physical examination or referral if they think that's necessary. Tell them you have thoughts that you may have a gynaecological cancer. They would ask about your symptoms, and then they tell you what they could advise.

    The more anxiety and worry you have, the more your mind can imagine symptoms, which you then go to dr Google with and match up to a cancer when there could be many other simple explanations. The more you imagine you might have cancer, and the more time you spend on a cancer forum, the easier it is to convince yourself there's  something seriously wrong. it's not impossible, but it's highly unlikely.

    I really hope you can get some help and that there is nothing seriously wrong. I went through this cancer twice and never considered I would leave my children. A positive attitude made me more determined to stay around! 

     

     

     

     

  • The reason I have it in my head is because of strange symptoms for me and I've had swollen lymph nodes in my groin for a year now and I am getting more and more worried I have got the doctors to check them a few times but say they are not big enough to cause concern but they have got bigger and harder. 

  • If different doctors have checked them and said they are not a concern but you're still worried, then you should make another appointment and tell the doctor your fears and have them check them again if you feel they are bigger and harder. 

    Doctors all follow the same guidelines when examining someone and deciding if a patient needs a referral for further tests, like an ultrasound which would be the standard lymphnode exam. Try not to keep poking and prodding in the area as that doesn't help.

    I think your previous ultrasounds have been clear, so would it reassure you to have another one? Or is there some specific testing you are looking for the doctor to arrange for you? 
     

     

  • Hello Minska 

    I just wanted to say, I've been reading through your posts and I just wanted to say, you are truly amazing. Absolutely amazing and you are such an inspirational woman x 

    I have not been on here long and currently awaiting results myself, I won't go into it here because I have already written about what's happening with me on my own post. But reading your posts and about what you've been through just made me feel like I can relate to a lot of what you said. 

    You have an amazing positivity about you and I just wanted to say thank you.  Reading your reply to mumscared24 made me kick my own back side and say "stop bloody worrying" "you don't know if it is or isn't!" "Think positive"

    Thank you for being you, you've helped me feel more positive today xx

  • Hi Twinkle-Toes77

    Thank you for these very kind words, which are much appreciated and made me smile today. I try hard, though I don't always succeed, not to worry until there's something to worry about. Otherwise you have either worried yourself for nothing or you have to go through the worry twice!

    I see you're still waiting for results-that's always a difficult time, when you don't have the information you need or a clear path forward. I hope you won't have to wait too long before you know what's happening, and if you ever need a chat, I still pop up here now and then. xx

     

  • Bless you x thank you x

    Can I just ask....when it all started with you. Did you have period style pain and cramps, shooting stabbing across your tummy? Back pain? Change in bowel moments? Oh and post menopausal abnormal discharge and bleeds? Now feeling nausea and feel full aftet eating a little bit. My pain is constant, no over the counter tablets take the pain away and I'm getting pressure pain in my hips in bed...having hot water bottle on my tummy all the time, it's the only relief I get. Its been going on since August, just hoping for positive news from the biopsy. 

    Just keep thinking....what the hell is it, I would love to feel back to normal and go a day without pain.

    You are right....the waiting is very stressful and all can be done is think positive and try to ignore the pain. I am sure you will agree, it is easier said than done sometimes. 

    Anyway....thank you again....positive thoughts here sending you hugs