Cervical Cancer-Hysterectomy

I’m not newly diagnosed in the sense that my first diagnosis of stage 2b cervical cancer happened last year. I was successfully treated with chemotherapy and radiotherapy and my scan 3 months after the end of treatment showed no evidence of disease. 

I attend 3 monthly check ups, and in October this year my consultant identified an area of concern he wasn’t sure about. I had an mri scan, petscan and biopsy under general anaesthetic and yesterday received the news that there is a small piece of residual tumour which is growing again. This is my “new” diagnosis, hence posting in this section. I cannot have more radiotherapy, but my consultant is prepared to operate now, whereas this was not possible when I was first diagnosed.

So...I am scheduled to have a total abdominal hysterectomy with bilateral saplingo oophorectomy on 7th January where they will remove my uterus, cervix, ovaries and Fallopian tubes. 

I wondered if anyone else has had this surgery following pelvic radiotherapy? It’s not too common and does carry a higher risk than a similar operation carried out on a woman who hasn’t undergone radiotherapy. I’m happy to accept that risk in an effort to be rid of this, but I’d be interested in hearing from anyone who has had this operation. I’m expected to be in hospital for about 3 nights afterwards I understand. 

 

 

  • Hi Minska,

    I'm sorry to read you're having to go through another experience like this. I hope you're getting on OK and I'm glad it's not too long to wait now until the surgery.

    If anyone has experience with this then hopefully they'll see this post and be along here soon. Either way, I know you have good support from others on this forum and we're always here to listen.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Thanks Ben

    I’ve edited my title to see if the word “hysterectomy” will attract a response! 

  • Hello Minska... I've been following your posts and have to ask how you've managed to get through the latest surgery in January.  I hope it was successful and you're well on your way to a full recovery.  All the best. Diane

  • Hi Diane

    Thanks for asking...unfortunately my surgery wasn’t successful. When they started the operation they discovered that the damage from radiotherapy made it unsafe to continue, so the decision was made to staple me back up. I have recovered pretty well from that and I’m now having a pelvic exenteration in just under 3 weeks. That will remove everything from my pelvis and leave me with a colostomy and urostomy, but it does offer me the chance to be rid of this once and for al so I’m happy to go for it. xx

  • Hello Minska

    Wow... that's a lot to deal with.  I have wondered what the radiotherapy really does ... and now we know.  I still radiate heat more than two and a half months later... I also had brachytherapy - who knows what's going on inside me.  What a thing you're going through, it sounds really tough, but you sound positive and that's a good thing.  That sounds like a major operation too... but the good news is they're able to do it.  A few years back they might not have considered it, so at least we are in a good place with what's on offer.  Please do keep us informed and i'll be thinking and praying for you in 3 weeks time.  Best Diane

  • The radiation got rid of the cancer first time round, but it also causes a lot of damage to organs like the bladder and colon, and things get stuck together in there. That’s one of the reasons it’s important to use the dilators after treatment too. 

    It’s a massive operation, lasting hours and involving 3 surgeons, but I want a chance at getting my life back. How are you getting on? I’m so out of touch with not being on here recently. Are you coming up to a check up time? xx

  • Thank you Minska... they don't really tell you about that and give the impression that the radiation is targeted onto the tumour.  I have spent a great deal of time worrying about secondary cancers caused by the radiation.... my follow up is in March, still waiting for MRI appointment.  I doubt whether anything could have survived the brachytherapy ... including my bladder and bowel !

    It does sound like yours is a massive op, but imagine you are quite confident, and I'm sure they wouldn't do it unless there was a favourable outcome... 

    Dx

  • Brachytherapy is directly targeted onto the tumour..external radiation has a wider field. I don’t have a secondary cancer..mine has grown exactly where it was before and is classed as residual tumour, so there must have been a tiny bit which wasn’t picked up on a scan but which was able to grow back again. I didn’t have brachytherapy so I’m sure that must have disadvantaged me although they haven’t said so. But all radiation can cause tissues to fuse together..hopefully you won’t have any issues though! 

  • Hello Minska

    Hope you're well.  How did your surgery go in March - I hope it was a success and that you're recovering well.  Wishing you all the best.  Diane 

  • Hello Diane

    I'm so sorry I never saw your post until today. I am pleased to say my surgery went very well, and all the cancer was removed with clear margins. Recovery has been pretty tough, but I’m doing really well now and feeling great! I do hope you see this, and appreciate you checking in on me. How are things with you? x