Diagnosed with breast cancer 4 days after my 34th birthday

Hi I’m new to the forum I was diagnosed with breast cancer two days ago at the age of 34 .. even writing that first paragraph helps lift some of the weight I’m feeling ! New to all this not sure if I’m doing it right so bare with me ;) 6weeks ago I found a large lump fast track referral to breast clinic breast surgeon wasn’t worried his words were benign nodularity! I could breath again and wasn’t worried after all a professional had said benign and looked normal ! But he had only felt it I had no test  s he said he would refer me for  an ultrasound to put my mind at ease ! 2 weeks later I had my ultrasound I went on my own as wasn’t worried as be ign nodularity was in my head , the radiologist body language change as he was scanning he kept doing deep breaths then said after 30 mins “ I want to do several biopsy’s now ! I went numb he said I also had a cyst which he drained there and then , tearful and sore I left the hospital and was told I should hear within 10 working days .... the waiting game began again it’s one of the cruelest parts I think so 8 days after my biopsy at 8am on a Friday the hospital calls .. my breast surgeons secretary says we have your results can you come in TODAY  at 2 pm , felt like I’d been hit by a train I was at work in tears panicking two scenarios were crossing my mind ... maybe I’m all clear and they want me rushed of the books so they can help other people  ? Or maybe I have got cancer :( fast forward to 2pm I get to the hospital early and start clock watching ... gets to 2:30 every one else is being called in before me even ones who have just turned up ! A nurse comes to me and says sorry because u was put on system at last minute we need to get your file !! Surely they should of had it ready after calling me !! 2:50 I finally have a nurse call my name my partner and I go to walk to the room every one else has walked in where my surgeon is ... no miss can u come to this room (and empty room at the bottom of the corridor) we both sit there thumb twiddling I can hear my surgeons voice and two women talking as they come into the room 10 mins later ... my surgeon walked in his nurse walked in then followed by another nurse wearing Macmillan badges and lanyards holding a BC folder ... my heart sank the surgeon just blurted if out all I could hear was white noise after that . Sorry for the long post I tend to blabber .. my cancer has been graded but not staged yet there waiting for more results I should have them Monday , I have grade 2 invasive ductal  BC it’s 12.5mm my lymph nodes look clear on ultra sound but they want to remove a couple and got to have mammogram in the next week , but my surgeon and nurse want me to have the genetic testing because of my age to see if I carry the gene BRCA (think that’s the name) they don’t want to operate now incase I have the gene if I do they want to do full mastectomy so another waiting game... if you got this far we’ll done and thank you ! My question now is has anyone had this genetic testing before treatment as would like more input from experience? 

 

T xx

  • Hi T

    Sorry to hear about your diagnosis. You must be in great shock still.  Last week  nov.20th, I went to the breast clinic. As I had felt 3 lumps in my left breast. Had a mamagram then a ultra sound. Got told I have 10 cysts in my left breast. But then the lady doing the ultra sound found a bigger hard lump that she was wortied about. The consultant came over and said it was benign straight away. But I still had a core needle biopsy done. This has left me confused, having 2 people say 2 different things. 

    Im going back on Tuesday for my results. I have prepared myself for the worst.

    Let me know if you can how you get on. The waiting game is so hard. I havnt told my family yet. As I dont want to worry any one with out reason.  Plus I am by myself.  Xx

  • Hi,

    I know exactly how you feel. It's such. A scary time but you will feel better once you get your head round things. I'm 43 and was diagnosed with a rare aggressive breast cancer on the 1st Nov from biopsies of a lump. They took bloods on the day of diagnosis for genetic testing and I got the impression it is standard procedure as they said it was unlikely the type I've got is genetic. They store the blood, even if it is negative, for future testing incase they learn about new genetic markers. I've had my wide excision surgery last week and sentinal node biopsy to check for spread, because, like you my lymph glands looked ok on u/s. now more waiting for my pathology results which I should get on Friday. This will give me the grade and stage. Although they've told me it'll likely be grade 3 I'm really hoping it's an early stage 1 or 2 with no lymph node spread and the excision has got it all. If that's the case then as it's a triple negative cancer, it'll be chemo and radiotherapy to try to prevent any recurrence. 

    Did they give you any info on whether it was hormone or her2 positive? At least the lump is small so it sounds like they may be able to do the same as I got.  

    I know how scared you will feel and you will imagine all the worst possible outcomes but focus on the fact it is small and stage 2 and totally beatable.xxx