Breast Cancer Diagnosis, now problems!

Good Afternoon

I found a couple of lumps earlier this year in my right breast and had a mammogram to check this out.  I received a letter telling me that there were changes to my previous mammogram and to return to the hospital for a further mammogram and ultrasound.  During the ultrasound I was told the lumps were definitely not cancer and calcifications (totally normal in someone of my age).  I received a letter two weeks later asking me to attend a consultants appt in a further two weeks, which I did.  The consultant confirmed I did not have cancer and that that the lumps were definitely calcifications, however he could see something else that whilst not cancer he wanted checked out.  I had 7 biopsies on 10th August and told the results would take 5 - 6 weeks.  Whilst shopping on 19th September I received a call from the hospital asking me to go in to collect all my papers that day which I did.  I went to collect the papers and was told I actually had breast cancer which nobody who had seen my file could believe (their words not mine).  The lump was not large (approx 2cm diameter), could not be felt externally and would be removed by lumpectomy on 1st October.  The operation went well and I came home the following day sore but happy.  By 5th September my breast was huge, the wound was splitting and oozing plus I was in a lot of discomfort.  I was sent back to hospital and underwent emergency surgery for a severe hematoma and infection.  After my release, my daily nurse was happy with my progress (albeit slow), but after a fortnight felt that things were not right and called in my doctor who referred me to A&E.   Subequent to this I have had 3 further hematomas and another infection which has resulted in two further surgeries and daily visits to our hospital so that they can keep an eye on this.  Obviously during all this time I have been on antibiotics along with painkillers and just waiting for things to get better so that I can put this all behind me and get on with life.  Last week whilst having my daily check-up they did an ultrasound to try to identify the core of the infection as things progressing too slowly.  They did this and undertook so were able to do a "deep clean" under local anesthetic.  The positive here was that the guy doing the ultrasound also confirmed to me that they had removed all of the tumour which was a wonderful result amongst all the negativity.  Wednesday (30th Oct) we had a follow-up consultant appointment to check status of the infection (healing but still very slowly) so continue with antibiotics and daily cleaning.  During this visit the Consultant then confirmed that the tumour had been fully removed along with 4 lymph nodes.  However,  then the bombshell, the cancer was evident in all the tissue removed from around the tumour and as such I needed a mastectomy which they had ideally booked in for Friday 1st November - yes 2 days later.  Due to the infection though, they would be unable to operate until this had completely cleared and they requested further blood tests which were done.   Thursday night the hospital called to say I had an appointment with the Hematologist 8.45am 4th November, yesterday.  The Hematologist was great and went through everything, my medical history along with the current situation and then explained that there were some concerns with my blood that means my mastectomy has had to be postponed until after they have carried out further tests.  The initial concerns are that I have Hemolysis and Coagulation issues.  I had further blood tests this morning and now just need to wait for the results to see where we go from here.   

I'm really sorry this is long but just wanted to know if anybody else has had similar issues and how easily and quickly it was all resolved as trust me, it's been a long time since my first operation on 1st October!!  Incidentially, the initial BC diagnosis really doesn't even factor as there has been so much going on since my operation, plus from being diagnosed to having the initial operation there were daily tests etc., to be done so our feet did not touch the ground and haven't since.

Thanks for letting me ramble on and hope you didn't get bored reading!!!  Have a lovely evening, Rosie

  • Oh Rosie you have certainly been through the mill!!! But you sounding like you handling it like a trooper even if a bit frustrated!!! I've not been in your situation but my heart goes out to you for the chaotic whirlwind you currently in!! 

    I'm hoping with all hope you get the blood results you need to move forward quickly.  Seems to be a lot of important information they've omitted telling you along your journey, I'd be really frustrated.

    Keep on at the drs and hospitals!!

    BW

    JBee x

  • Hi JBee

    Thank you for your reply, I really appreciate it.  

    I think half the problem is that when I go in for Consultations my brain goes to mush and I just accept all they say.  To be fair, the Consultant always asks if I have questions but once I've been updated, I just want to get out and get on with moving forward and putting all this behing me.  I have started to write questions on a piece of paper for my next appointment as I saw suggested on another post in the forum so hopefully I'll have more of an idea of things soon.

    The worst thing for me is that whilst I go to bed and fall asleep, within a hour or two I am wide awake and cannot get back to sleep until 4 or 5am but I'm sure that in time will improve!

    Rosie

  • Hi Rosie

    I understand exactly what you saying, I think we all get brain freeze whilst sitting in front of a consultant.  Good idea writing questions down and also the answers.... don't forget the answers :)

    Disturbed sleep is common, as we all different it would be hard to say what could help you.  Lucky I only had a few times like that, most of the time once asleep I was out like a baby.  Perhaps its something you can mention to the consultant, because lack of sleep will get really exhausting mentally and physically, and if you don't ask you won't know if its something they can help you with.

    Please keep us updated on how you getting on.  I am in and out of here so will also keep a check on you.  I have appointment with oncologist on 12th Nov to find out my next plan, at the moment it is 3 weeks radiotherapy and 10yrs Tamoxofin, not sure I want to do the Tamoxofin but will chat with them and see what gives :)

    Have a good day 

    JBee x

  • Morning JBee

    Thank you again for coming back to me and good luck for your appointment on 12th November.  Can I ask what your situation is and did you have BC and how it was dealt with please?  I'm new to this forum so just trying to find my way around and don't like to jump on other peoples threads.

    Feel absolutely great today, amazingly after just 4 hours sleep again!!  I'd love nothing more than to have my drain out though as I have had it in now since 5th October so a month and feel very conscious of it.  Mind you, having written that I now think I'd like a shower even more!!!!

    Hope you have a great day, I'm off to buy some new PJ's for my next hospital stay!!!!!

  • Woo! Just reading all your feed you have really been through it. I was diagnosed with breast cancer last week and waiting for the mri next week. To date my lymph glands have been clear but this morning my arm pit was aching never done this before so stressing no end. I'm hoping it's due to my period as I'm due on. I just want the op and to have it out but don't think that will be till the end of the month. It's a horrendous time and at the moment have only told close friends and family. I feel like I have been on such a journey these last two weeks and just feel like I am living a dream. No idea how I'm still functioning but I have two young daughters so need to keep things normal for them. I'm also awake 5am every morning!! X

  • Haha!!! Damn cancer been playing musical organs with me!!! I've flown through everything thrown at me so I know how strong we can be.  I've also been really lucky, bowel was very early find, liver turned out to be nothing... they lost the spot!! And then now this, surgeon said to me, as I asked if they consider the breast secondary cancer since I already had a total hysterectomy nearly five years ago, she said no it's not and it's just *** for luck lol but I'm still here and only 50!,, hope this is the end but my confidence is waining thin xx

    The wait is the worst, and you right we just want the horrible disease removed as quickly as possible but just keep yourself busy and mind on other things.  Easier said than done, but for your own sanity you must try.  I think you should phone consultants office and tell them about your armpit, don't procrastinate  most of my work know and they've been amazing, friends and family too.  I've always spoken openly about it so if I have a bad day and I come across in a bad mood it's not them, it's probably me lol

    Hope you've had a better day today, I've just got back from work, having a nice coffee and will go shower in a bit.  Always here to talk to you if you need to rant.

    love and hugs

    JBee xx

  • Hi Mic-st

    I'm interested that so many people have an MRI, I've not had one at all or been offered one so obviously my Consultant doesn't think I need it which I'm glad about.

    Do you know what your treatment plan is yet?  You say you are having an op do you know what op you will be having and the further treatment or do you have to wait for the MRI results before you get that?  Please keep me updated and perhaps we can go through this journey together!!  My children are much older than yours and we have a 2 year old Grandson who keeps us laughing through this.  He was due to stay with us for 3 weeks whilst our Daughter and Son-in-Law went on holiday but my Daughter cancelled their holiday.  Just as well having gone through the pickle we have but my goodness we did miss having him.

    Please get your armpit checked out.  I had my daily wound clean and dressing change this morning and asked my nurse if you should and she said definitely.  At this point in time they need us to notifiy them of any changes at all.  Let me know what your GP says.

    Take care of yourself and keep being upbeat about it all - positivity and keeping well is critical as we travel this journey!!!! Rosie x

  • Thank you so much for your reply. I just got in from a half day at work and read your message and rang my care worker and she said it was prob due to my biopsy. Feel a little better now was nearly crying on phone!! I'm just having a breast mri on tues and then think I am having the lump removed at end of month prob starting chemo after Xmas.  Feeling quite emotional today I stupidly read a blog about someone's chemeo last night and now I am absolutely terrified. Think I am still in denial haven't even told work yet waiting for mri result first. I know it's Ductal cancer and just the one lump and clear lymph glands (well now hopefully)! Sounds like you have a great supportive family.  Do you have to have chemeo?!X

  • Oh my goodness I feel for you!  Good on you for ringing your care worker, hopefully she put your mind at ease a little but from reading other posts on here, once people have been diagnosed they put every problem that occurs down to it when in fact there is another reason.  That's why there are care workers to advise and help through these horrible times.

    We only told my parents and our Son and Daughter as we didn't want anybody else to know.  Due to the issues that have occured since, we have told one couple who are our close friends and it's been great them knowing as it has helped immensley.  I think you should tell your work if you don't mind me saying.  They will need to be supportive to you through this and the longer you leave it the harder it will be for you.  I'm sure you will find it a relief once you have told them, not least of all if it does all get too much for you and you need time off before you operation they will be aware in advance.  Let me know what you think.

    I haven't been good at asking what is going on as I feel if I know I have to deal with it.  If I don't know then I can bury my head a little bit.  It was originally a lumpectomy/lymph node removal followed by radiotherapy but as you know since my last appointment I now need a mastectomy and I admit I walked out from that appointment in a bit of daze.  Will see my Consultant next week and have a list of questions for then so will know more then I hope!!  x