Need some hope

I was diagnosed with stage 4 cancer in September, I can't say exactly what because my diagnosis seems to change depending on who I speak to.

I find my consultant and key worker very negative. When I ask questions to try and understand and come to terms with what I have I am just told to accept what they are telling me. They seem more interested in giving me advice on getting my finances in order and claiming benefits that I don't currently need.  

I have been feeling very positive up untill now and felt that my first cycle of chemotherapy went really well. I had no side effects and within days my symptoms went completely, but, when I met with my my consultant she seemed almost dissapointend when I said I am still running, working and carrying on with life as normal. 

Has anyone else experienced this negative attitude from their consultant?  I feel like everyone has given up on me but I am only 40 and not ready to give up yet. 

 

  • Hi there ..

    Deff don't you give in .. what a lot   of doom and gloom lot  you have ...  well cancer wants us to lay down and never get up... give up ... and just wait ... well dont let  it .. sinse my diagnosis,  ive looked at every day as a bonus... wake up and say, "yep still here"  and weather i have a month or year , or whatever i get, ill make the most of every day .. 

    So you run , work, and do whatever your body tells you it can do ... and never ever give up ... you stick two fingers up to cancer... I do ..

    One of our regulars was diagnosed with terminal cancer years ago .. he lived life to the full ... made every day count and now hes cancer free .. i know thats a little mirical ... but never ever give up hope ... 

    Bless ya .. and I'd ask for a different oncology team... lol ...  Chrissie x

  • Hi georginaB  you definitely want to see if you can get another team to work with you, i was diagnosed stage 4 in Feb 2016 how long I'd had it before that nobody knows, like you i worked through my cemo i had some bad days but managed OK most I'm uncurable so my specialist says others say its same as terminal, i just live with my uninvited guest, it is possible to carry on normal, hope you get more positive vibes from others, best wishes... Billy 

  • Well God hasn’t given up on you.You are an amazing, special, loved, strong, powerful womman. You WILL come through this. 40 is young chick, I’m 49 dealing with mine. You can do it girl.  I am praying for you, I truly am.

  • Our oncologist is a shocker, so negative!  My husband was diagonsed with stage 4 terminal cancer in april and even tho he has responded remarkably to the chemo they are still all doom and gloom.  He has just been away on a cancer retreat which was so much more positive, talking about diet and nutrition and how it can help fight it, he's come back so much happier, if you can get on one I would.  The oncologists are great at dishing out posison but not so good when that fails and they have no ideas left- look elsewhere while you have the energy and this fight is about using your immune system to do so too, and whatever makes you happy is going to help your immune system and help you fight!  We are still going for the conventional treatment of course, but I take what our oncologist says now with a grain of salt, she may be right, she may be wrong with her gloomy predictions, but I don't take it as fact, everyone is different and they don't know everything although they think they do, as long as you are not overdoing it enjoy your life your way!!

  • Thank you all so much for your advice. I am feeling much more positive today. 

    I will continue to make the most of life, stick 2 fingers up to my uninvited guest, and my consultant too :0)

    Sending you all love and positive vibes. 

    Georgina