The first visit to the consultant was the terminal diagnosis

On Monday 21st October my life came crashing down. My beloved dad was diagnosed with lung, bone and liver cancer and he only has months left.  He had had chest pains that moved around  (between lung on the left and ribs on the right). His doctor told him to get a chest x-ray that he put off for two weeks till I took him.  Two days later his doctor called to say there was a shadow on his lung though may have been from an infection. On 17th October he had the MRI and appointment with the consultant on the Monday.  We arrived in plenty of time and due to his pain and breathlessness I got a wheelchair for him.  Arriving at the department we had a half hour weight before needing to get his weight.  Through no fault of the nurse as most patients go to get weighed without a family member I saw the patient sheet and saw the words 'urgent cancer next to his name.  We returned to the waiting room and I didn't say what I had seen, all the while falling apart inside for the next 45 minutes till we were called in.  Then were told the news and that it is terminal.  He has months....they may be long or short.  We lost my mum to dementia years ago but she passed on 1st June and I feel my dad had kept himself going to care for her.  I am 40 years old but still think of myself as a 25 year old daddy's girl.  I am completely broken inside. I am and need to care for my dad and having the first appointment with such final news has devastated me.  I am keeping strong for my dad but keep having melt downs when at home away from him.  I am terrified of what is to come. I don't want to loose him and since the news nothing else in my life seems important, not even my husband or sons needs. I am desperate to make this Christmas special.  I had got us holiday cottages as I thought the first without my mum would be hard, but now knowing it is my dad's last is ripping me appart. I guess I am asking for tips to hold it together. To make this all special. To know what to expect for a final christmas.  I am not even sure why I am posting this. I have been reading other posts and feel so much for everyone going through this too.  My son is 20 and didn't quite accept his grans passing and is taking it hard but still he seems to find time to spend with his friends rather than his grandad and I am quite unfairly annoyed with him.  I am spending nearly every hour i can and started staying over so when the time comes i have to move in it will not be so strange. He is young and so much loss in a short space of time is hard for me and I am twice his age I am just angry and upset and feel like I am on a roller coaster knowing the end of the track is unfinished and I can't stop any of this. Then there is the problem if what to do with my dad's dog.  He has a very typical Jack Russel and I have 4 cats so I can't take him. Dad wants him at home as long as he can be but I don't want him going back to rescue as he's been with my dad 8 years. I feel so guilty i cant even take the dog when he is gone. Thank you for reading the ramblings of a heartbroken daughter. Just writing this has helped.

  • Hello,

    after reading your post my heart does ache for you, and I can understand your pain. My mum (45) has been diagnosed with stage 4 cancer (breast, liver and bone) (only found out she had cancer 6 weeks ago) so this was a massive shock and like you say, life comes crashing down.

     

    all I can say is that you sound like you have a good support system around you, and for your son, were similarly ages as I'm 24, and I imagine it is his way of dealing with this, as we all have different coping strategies.. This is a lot to happen for a person in the timeframe you've had, and do not feel guilty for feeling the way you do, it's great you've reached out on here. For the dog situation, I would just say do not worry about this for now, as you have lots of options. 
     

    im sorry I could not give more help, but I just wanted to let you know that you are not alone and you do not have to go through this by yourself. Please feel free to drop me a message if you ever need to chat/vent x

  • Thank you for such a sweet message.  It is nice to feel like others get 'this'. I am so sorry to read about your mum. You are so young to be going through this and your mum must appreciate your support so much. I really hope for some positivity with your mum's cancer and there is some treatment she can receive.

     

    The offer you gave me is reciprocal. Although I have great support people don't quite get IT. I am also here as an ear.  

     

    Thank you again. This means a lot. Xx

  • Hello venicechar ,I'm sorry  to be reading this ,my personal experience of going through the devastating time of my dad, my hero having terminal lung cancer at Christmas ,knowing it would be are last as a family,treat it as normal as your family Christmas,s are love,laugh,take lots of photos and don't let it ruin any precious family time ,and your son is no doubt just as scared about everything as you but is choosing to try close it off. xx

  • Thank you so much for this.  Christmas has been hard the past few years with my mum's dementia and her temprimental temper. This year was to be the relaxed Christmas we always wanted.  I have asked my husband to be camera man and capture all the moments.  I am heart felt sorry about your dad.  My dad has also always been my hero.  There is a pedestal that he sits on.

     

    I phoned the holiday cottage today to ask if there will be a Christmas tree and they offered to leave it un decorated so we can do it together. (A fist as my mum was chief tree decorator) I am looking forward to these little things and want everything to be perfect as I know I won't ever have a second chance.

     

    Thank you again and hope Christmas will not be too painful for you. Xx

  • Venicechar,

     

    I have sometimes felt myself frustrated as many people do not get it. But I realise that it is something so hard to relate to unless you have gone through/going through yourself. My mum is only at the start of her treatment but obviously incurable and unsure the time frame left. Like you stay, creating memories now is going to be the best thing to do not only for yourself, but for your dad and family too. When we remember it tends to be the bad times but creating as many good memories as possible, will be something you will cherish and be great full for.
    Sometimes I feel like just running away as it is so much tragedy to deal with, but I realise the best thing to do for now is face it head on and be there for my mum. Maybe ask your son if he wants to come along with you to visit your dad, as much as he feels like shutting himself away I feel he may regret not spending as much time with him. I agree with tulluah, make Christmas feel as much and as special as it usually does with your 'tradition', but also remember to take a breath and know that it's okay to feel like that never ending rollercoaster. This raw news will settle and you will find new ways to cope with this. 

     

    stay strong and make memories x

  • Thank you for your lovely words. Sorry for the delay, have been staying over with my dad last 3 nights and I try to stay off the C websites when I am with him

     

    . So today we had biopsy.  They are willing to try radiotherapy and are reasonably confident that dad will have a comfortable christmas.  The cancer in now in lymph nodes and spine. But we are confident that he is going to battle as long as he can.

     

    My heart really goes out to you with the uncertainty. I know what you mean about at times wanting to run away. I felt that with my mum and her dementia as there was no time frame, it felt like a constant cross country race rather than a race track. You need to take care of your self too.  If you want to off load please feel free to PM me. It is 'nice' if that's as appropriate a word as I can get, to speak to someone that gets this. If I can lend an ear I am here. 

     

    C x