Lung Cancer Stage 4 at 41 which has spread

I found out on June 3rd that I have stage 4 lung cancer which has metasized to the right adrenal glad, stomach, and bone :-( EMERGENCY radiothreapy in July as bone cancer showed it was 2cm away from hitting spinal cord, I had repeatley gone back to my GP at the beginning of the year as I was suffering from excruaiting shoulder pain, I was palmed off and told it was in my head... Long strory short I went into a walk in clinic at the end of May and they suspected gallstones, How my life CHANGED on the 3rd of June... I started chemo on the 9th August to be told after 2 cycles it wasn't working and CT scan has now shown 3 small nodules on liver, I'm now on a new type of chemo Doctaxorel, I've had 2 cycles one more this Thurs and will be re - scanned, I'm absouletey dreading the results... But I'm a FIGHTER!!! The last couple of days I've had real bad fluid building up in my legs and face, been feeling quite breathless too... Some days in my head I don't even feel like there's anything wrong with me...this is one *** of a disease and I feel lost at times...Sorry if I'm having a rant.. Xx

 

  • Hi missy m don't worry you'd be surprised how many people come on forum for a good rant. Oh and welcome to the club nobody wants to join,, I'm different problems to you but i fully understand, I've prostate cancer that's gone to lymph nodes, spine, ribs, pelvis and a lung, uncurable was diagnosed Feb 2016 had docetaxel cemo had 6 sessions was supposed to be 10 but struggled with side effects, i call it my uninvited guest we just live together if you want to talk your welcome anytime.... Billy 

  • Have just joined this group and read your post Mssmuggle37. Your experience is nearly identical to mine. Was told my shoulder pain was OA.To cut.a long story short now told have Stage 4 lung cancer metastasized to spine and right adrenal gland. Waiting radiotherapy to spine and been told will have target therapy. Night sweats horrendous. Worse thing is coping with family members pain when I told them. Like you some days are better than others but its so hard to be positive like other members on forum, maybe I am not as strong as I thought I was

     

  • Hi Billy, 

    Thanks for your message, it's always good to have a good rant or cry!! Aww bless you with what you've got, I've also been told mine is incurable and they can try to control it,  and if I respond to chemo, first lot failed, I can't believe the side effects on this docetaxel....

    Luckily my hair is still holding on, just thinning quite a bit and I'll be sitting watching TV and bits will fly off... Lol Did you lose your hair?

    I call my uninvited guest "HANNIBAL The LUNG Leech" and the 3 liver nodules "The PYSCO Brothers"... I have to somehow make this awful disease a little of a joke, otherwise I'd give up and cry.... 

    How is your treatment going now? I have a session of chemo tmrw and then CT will see how it goes.... 

    Really appreciate your message, let me know how you get on, if you need to chat/rant I'm always here, keep in touch and speak soon

     

  • Hiya Body p

    Aww bless you it's terrible when the docs palm you off, I walked out the surgery of mine on April in tears... I had to have urgent Radiothreapy the one plus I had it took my shoulder pain completely away How many sessions are you having? I went Mon-Fri everyday, really did help, Do you know the name of the targeted threapy your having?

    I know about family I feel so guilty at times and scared for them when I see them upset....

    Like you with the good and bad days, I've told myself that I'll NEVER GIVE UP... if I allow myself to wallow I know I'll never get up,  TRY to stay POSTIVE hon, WE CAN DO THIS!!!

    If you need a chat/rant I'm always here, we can RANT together, let me know how you get on, keep in touch

  • Hi, my diagnosis is fairly new. I am waiting for date of radiotherapy and targeted therapy. Seeing Oncologist next week. Have been told about plan by Macmillan Link Nurse who attends weekly MDT. She has been fabulous but communication between us and medics not so good. Trying to stay as positive as possible. Will let you know how I get on. Thank you for your reply and good vibes xx

     

  • Hi lost some of my hair right on top i looked like those monks you see in the old films, mind you had a nice surprise it came back curly in sted of straight almost worth having it (almost). They say that cemo is one of the worst ones,. On my fourth session i spent ten days going in and out of a coma, i have other med conditions and it reacted with cemo, specialist told me that I'd need more cemo before the first year ended but no more yet I've been very lucky,. Hope you're next treatment works for you, one of the strangest side effects was my middle finger it usto flick sideways over the other fingers, ouch doesn't explain it it was agony and i had to try to pull it back in place to ease the pain it usto do it 5or6 times a day or night eather hand,probably need more cemo next year to take cancer count down again,, just keep going round in circles,, good luck you deserve some. Best wishes.. Billy 

  • Hi, I read your post a few weeks ago and wondered how you were getting on?

     

  • Hi NeNe123

    i was wondering how you were getting on. Hope things are going good for you.

    keep in touch. 

  • It's Julie here,

    I feel such an igonarant Biatch in not replying to you all, Billy P, Maggie etc.

     

    I'm doing OKish at the moment after my last CT I was told I'M STABLE NO NEW DISEASE PROGRESSION, I have a immuno threapy 4 weekly bone injection which has been stopped for 12 WEEKS coz of Covid-19

     

    I'm in agony and it makes me soooooo I've even asked about having it done private but told not possible. Enough of me how are you all?

     

    Hope to hear from you and I PROMISE I won't dissappear again. 

     

    Love Julie x

  • Hi Julie, Just to say I'm full of admiration for the way you are coping. Stage 4 Lung Cancer is a tough one, even by the standards of this forum. Wonderful that you are stable. Here's hoping it stays stable and that they can get the pain under control. Best wishes, Harry