Thank you so much this is calming me down so much x 

Keep in touch and let me know how you get on. Ask me anything you like rather than worry and I will help if I can.

Elen. X

Hi Lee 

This is Hazel aka RadioactiveRaz I am now 14. Month post radiotherapy for tonsil cancer with spread to several lymph nodes  and I am here living life to the full , git all clear in January was diagnosed 29 May last year .

best advise 

1 keep of dr google please everything on there unless Cancer U.K. Macmillan or personal verified blogs can scare the living daylights words from my oncologist yes word says I never thought would apply to me my oncologist!

i have a blog from day one to present day if you feel brave give it a look www.radioactiveraz.wordpress.com

remember we are all different some might apply to you some won’t. 

Next the n h s have a timetable from diagnosis to start if treatment I was 62 days seems like a long time but it’s right with the n h s guidelines okmwe all want to  be treated stfaight away butbthere are protocols to adhere to . Anither piece of asvise take someone with you to every appointment there job isn’t to write things down as I guarantee yiu your mind will turn to mush. 

Ask what your t. N is t is tumour size n is has it sorrad to lymph nodes  the nd is has it spread away to other parts highly unlikely I was a T2N2NM also I was h p v 16+ again ask if you are , it does make a difference to treatment. Although your consultant s will be aware if all these always worth asking that’s if you are. Nosy. Like me , some people don’t want the details your choices .

Try and lead as normal a life as yiu can you arecreally in the best hands our n h s really do come up to the mark as far as cancer treatment is concerned. 

If you feel happier private messaging send me a friend request 

Hazel. Love to you’re famiky as well 

Thank you so much, I get my results Wednesday, I have a pain back of my head top of my spine and a pain left side of my neck going into my head? For some reason my face itches if places strange? Any ideas, I read that you had a pain in your neck like I have but I haven't spotted any raised lumps yet,

I'll post my results next week 

Hi lee not being s medic it could be your lymph nodes that’s what they do they catch the dead cancer cells and hold them there instead of them flying round your body. Csntvsay my limo hurt it was just there a lot  could be the stress of what is an extremely stressful situation waiting for results. I went through every scenario possible from attending my own funeral that was unreal I assure you to plotting who I could fix my hubby up with. All I can say is hang in there until Wednesday and ask the team as many questions as you can think off and if in doubt ask them to explain in plain English.keep in touch H 

ps didn’t have any itching sorry 

Thanks again help me sleep tonight, hope you continue to recover and be well, keep it up 

Morning Lee, just read Hazel's post and I agree. I was trying to find a nice woman to look after my husband and cat when I'd gone! The tension is terrible and can cause all sorts of pains. Just don't look at google.

Will be thimking of you on Wednesday.

Elen. X

Thank you so much 

Hi Lee

I know how hard it is during the early stages but you will get through it!  I have followed the threads here and the amount of support and positivity you have received must give you some confidence and strength.  This is my first post ever on any site so I hope you feel honoured :)  I was diagnosed in the Summer of 2017.  Then the amazing NHS machine swung into action and everything moved very quickly.  Meeting all my care team (surgeons, speech and swallow specialists, dentist and care nurse), having my MRI and CT scans, Xrays and untrasounds etc is all a blur now.  It happened so quickly and a few weeks later I was in hospital for my big OP!  When I spoke with my surgeons they told me that they had caught my cancer quite early but then went on to tell me in detail what my OP would involve.  That was a big shock but they then went on to tell me that the aim was to cure my cancer, not control it.  You will go through a lot over the coming weeks and months and I hope you have the support around you to help you through it.  You will get through it and come out the other end like I did.  Top tip! don't pull your NG tube out (your feeding tube).  I did and they had to put it back in while I was still conscious.  Big mistake! :D  I am now a Cancer Champion, I have done two 15000 feet tandem parachute jumps to raise money for York Against Cancer and the Head and Neck Clinic at the hospital and I am now hoping to speak to more people who are waiting to have the same OP as I did.  If you would like to ask me any questions, please feel free. Keep smiling...  

Hi Lee, I've been trying to post for more than a week, when I read your message.  I was diagnosed with a salivary gland cancer in my tongue after a biopsy of a small lump in the middle of my tongue near the front. I thought it sounded quite similar to you. I'm 62 and a new(ish) grandma. I was a bit stunned when I found out as I expected it was nothing much.

I've got an appointment on Tuesday with the medical team because it has been decided some more tissue has to be removed. Of course it's a bit of a worry and I'm hoping the next op won't be all that bad. After the first I couldn't eat anything much, even scrambled egg was difficult to swallow while my tongue was swollen. After about 2 weeks I could eat rice and pasta. It's much better now but it isn't fun thinking I'll have to go thru it all again. I hope you get news pretty soon about what the hospital plans to do, and that you can stay positive. Very best wishes, I'll be thinking about you and hope you will be able to keep up to date on here.