Relaxed and ready but tablet problems...

Hi all,

Had a lovely relaxing week away on a cruise and now ready to start my Radiotherapy therapy on Monday.....feeling very nervous but hoping it's not going to be too bad.....

What a nightmare I'm having with my tablets,Oncologist said Tamoxifen then said no and put me on Letrazole but hasn't told my GP who has only got info on me going on Tamoxifen and dispite GP emailing her no reply.... so GP has kindly given me a week of Letrazole Femara as they are the purest and as I have Multiple Sclerosis this brand should hopefully give me less side effects ..... any thoughts or experiences on them I would be so grateful,I can't take more pains than I already have from my MS 

Love to all xxx

  • Hi JBee,

    Day 14 done so into single figures now!! It's very doable and it's so quick but the tiredness has really kicked in now..... and my boob feels bruised too.... You will be fine as staff are lovely and caring!!

    When they've set you up and leave the room I count to myself lol and they are back before you know it.

    Im going to pole dance after my last treatment next week as I'm having 5 boosts which I was upset about at first but not at all worried now as it's extra security so this *** doesn't come back!! 
     

    Make sure you rest at least when you've done the first week,and it carries on working for 2-3 weeks after treatment finishes....are you going to ring the bell? 
    love xxx

  • Good morning :)

    5 boosts what does that mean??? I must admit I am getting a little nervous of the radiotherapy - not for the pain as such, but what it can do to you.  I am going in with lots of questions, especially the whole Tamoxofin thing.  

    Strange this morning I have woken up and the bruise pain has gone, its like nothing has been done to me, feel really good and hope this is the turning corner of that part of the process.  Its so strange as its not a pain just a contant discomfort.

    haha are you going to pole dance, well that would be very funny to see.  Not sure I will but if you say afterwards it was exillerating then I may consider following your footsteps.

    Sure everyone has been very lovely so far throughout my treatment, I think they all little angels - never come across any of the surgeons or nurses that don't show they really do care about each and every person :)  I took them in two large boxes of biscuits when I went for my checkup and results.  So sweet they were shocked which I was surprised at, but I guess they only here complaints and not often praise.  I felt good afterwards :)

    I am hoping I can do the radiotherapy around 2 or 3pm so I can come to work first then go straight from here to the hospital then home.... if I can manage for the first two weeks like that and then maybe if I am not so good take the last week off - it might help me better manage it.  I don't want the whole three weeks off.  Guess we will see 

    Hope today is a great day for you

    As always love and virtual hugs

    xxx

  • Hi JBee,

    Sorry taken all day to reply,number 15 today and boy has the tiredness hit!! Came home and went to bed and slept for 4 hours.....

    I was just like you with the fear of radiotherapy but it's a breeze as long as you rest,keep hydrated and slap on the E45 cream as. often as you can!!

    I didn't think about what it could do but apart from kill of any maybe lingering little buggers if there was any that broke away.....

    It was my Oncologist who has said 20 to have the last 5 as a boost which just targets where the tumour was and as mine was low down,small boobed it's extra protection that every single *** has been successfully destroyed..

    My appointments have been different times of the day so have to keep checking my print out to check what time I'm in lol 

    My whole appointment is for 12 minutes including getting you in position and then the radiotherapy which doesn't hurt in the slightest.... 

    The first 10 sessions I was fine but it's hit after and yesterday and today the worst for tiredness .....

    Amazing wonderful staff that are so under paid as they are caring angels for sure!!

    Hope I've got the energy to pole dance next Friday  

    Nothing to be afraid of at all hun from me who was petrified before the start....

    loads of love and squishy hugs xxx

    ..

  • Hi sweet lady you must be nearing the end now?  I wanted to give you a rest from talking to me but this evening I really wanted to check you good.

    big hugs and love  

    JBee

  • Hi JBee,

    17 done now and 3 to go!!! I'm on my boost 5 days now which is a breeze it's so quick....about 30 seconds!! 
    Boobs and above are a lovely shade of pink,slapping on the E45 cream which I keep in the fridge so it's lovely and cooling!!! 
    Have got tins of biscuits and chocolates to give all these wonderful caring radiographers on Friday,they have been amazing and you honestly have nothing to worry about....it's a breeze apart from the tiredness!! 
    Here if you want to talk lovely and any update on your next step? 
    love and squishy hugs xxx

  • Hi, hey that's so good to hear.  How is your skin coping really?  I'm thinking I might work from home the three weeks they proposing so I don't have to wear a bra.  Comfort first, plus like you I can slap on a load of cold E45 cream

    cant believe how quick your treatment has gone, can't wait to have three days left too, yes giving chocolate and biscuits is a lovely idea.  I did that for my surgeon and her team, got a lovely thank you letter back.  They all lovely and worthy every chocolate and biscuit

    Rest up love you doing amazing xxx

  • Hi,

    Skin is a lovely shade of pink way up above my boob!! But it's not too sore at all,bliss when I put the cold E45 on!! 
    I haven't worn a bra at all during the RT,just a soft sleeveless T shirt with a jumper over the top,so I go in whip them both off,they zap me,put back on in the room and I'm on my way home.

     

    I would work from home Hun as it's tiring as you go on and you can put your pjs on and rest if you need too and don't overdo the work when you are in your 3rd week because that's when it hits!!! 
    I have bought some lovely thank you cards and we are thinking of giving a small donation to them as well,wish it could be more to show my gratitude to these caring Angels
    xxx.. 

  • Good advice reinforcing my opinion, thanks I'm going to do just that.  The bra at work has been a bit of a struggle I must admit, nothing feels comfortable except s lose t/shirt thank good ness my breasts are not that big so I could hide them if I really wanted to Haha thanks again as always good advice.

    Where was your lump? I couldnt feel mine it was deep in the tissue, it was at 8 o'clock as they refer it. So mine at bottom right if I look down.

    Yes they are Angel's I'd love to give a big fat cheque if I could xx

    Take care I'm off to wat Ben Fogel new series on channel 5 in a bit.

    I'm on count down with you haha 

    Good night lovely lady I'll be back to check how your final pole dance went xx

  • Ha Ha,if I have to wear anything it's been a sports bra maybe once or twice!! Yes I'm only small boobed!!

    Mine was at 6 o' clock so I can't see my scar unless I lift my boob up lol 

    I couldn't feel my lump,niether could any of the specialists either,mine was in my right boob as well.

    Oh how I wish too I could give them a big fat cheque too.....

    Im going to sit and cry with Pride of Britain awards!!

    Enjoy Ben and catch up on Friday but here if you want to chat.

    xxxx

  • Mine on the right side too my incision was around my nipple so no other scar except a small one down side/edge of right armpit where surgeon took 3 lymph nodes.

    Enjoy Pride of Britain I think I'll watch that and record Ben ... spoilt for choice!!

    Chst soon xx