triple negative stage 3 incl lung

Hi all

I was diagnosed in april and have had fec-t ended in sept. I was advised i had a good response to treatment and penciled in for surgery 17th october. I have previously been advised that they are only looking to manage the cancer and that they can not cure it. I have extensive lymph node desease. my latest MRI advised one lump in upper outer quadrant has reduced from 14mm to 8.5mm and the breast lump reduced from 24mm to 21mm. My consultant penciled me in for de-bulking surgery subject to a CT scan. had my apt to review my CT scan last wed and the news was that i have desease in my upper outer quadrant of my lung so surgery was cancelled and referal back to oncolgist. I am so devistated. I have now had a call from the nurse to say they have had an MDT meeting last fri and invited to a meeting next wed to discuss options and for me to decide what route to take. does this mean that there is not much they can do?

 

  • Hello and thanks for posting on the forum,

    I am so sorry to hear about your situation. That must have been a difficult thing to have been told. I know that it is hard  waiting for your meeting on Wednesday but it is only when all the doctors have met and discussed your situation will they tell you what they are planning. There will be different options that they may consider.

    I know that you say that you have had FEC-T chemotherapy.  The doctors may consider using other chemotherapy drugs.  We do have some information on our website about the different drugs that are used.  Have a look here

    The doctors may also consider whether you would be suitable for a trial depending on where you are living. We do have some information on the website about the different trials.  Trials do have very strict entry requirements and you would have to match all of these in order to take part.  Also trials are only available in certain centres.  If you press the location tab it will tell you where they are going on.  To enter a trial you would need to be referred by your doctor to the doctor running the trial.  Have a look at the trial database here

    There is some information about the research that has been done in to Triple Negative breast cancer which is written by the charity Breast Cancer Now.  Have a look here

    You may find it helpful to read up about the different treatments that might be available before your appointment so you have more of an idea about your different options.

    It maybe a good idea to take someone with you to your appointment so you can take in what the doctors are saying.  If you would find it helpful to ring one of the nurses on the helpline then please do so.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Best Wishes,

    Catherine

  • Thank you so much for advising there are different treatments available.