Hi, I’ve just been diognosed with triple negative breast cancer. Surgery next month. I’m so overwhelmed and scared. Would love to talk to someone who has also been recently diognosed.
Sprry to hear about your diagnosis. I was diagnosed in March with a different type of BC, but thought I would pop on by to offer my support. I’ve just finished 6 rounds of chemo and awaiting a date for my mastectomy.
Have you got a date for your surgery? And what type of surgery are you having if you do t mind me asking.
It’s a bit of a whirlwind isn’t it. I described it as really *** rollercoaster that I wasn’t allowed to get off, it still feels like it’s happening to someone else, it does settle down though. And there are loads of great people on here who will be around to support you through it.
Surgery booked for 21st October. I believe it's for a lumpectomy . 2nd surgery 3 to 4 weeks later, either mastectomy or reconstruction . Chemo then radiotherapy . When will I stop crying? I can be level headed for a short time, then i feel a wave of desperation, despair. I keep hoping this is a very bad dream!!
To add to the insulte, my daughter is getting married on Saturday. Not sure how I'm going to cope!
It’s tough when you get diagnosed. I cried a lot and I’m not a cryer, I heard noises coming out that i had never heard before. I think for me someone said cryin and worrying won’t change anything , and yes it’s unfair, but better off putting energy and effort into getting better and enjoying things than wasting it crying. So I put my energy into researching how diet impacts on cancer as I wanted to give me the best chance of success, changed my diet etc, and took each day as it arrived, I still have low days but I can’t do anything about that, I can tackle what’s going to face me next.
So your daughters wedding, put your energy into enjoying the day, and creating the best memories, so you have happy times to look back on. Don’t let the cancer cloud your day.
I am ok, just coming out of the side effects of my last chemo (been quite rough- tbh), the good news is that I’ve gone from having a very large tumour to no tumour, then I need to get fitter for my op which will be around the same time as yours.
thanks. My mum had BC 17 years ago, she’s here looking after me. There are so many success stories and determined women who get through this.
So this wedding then. You will need to get your puffy eyes under control for saturday, hope you don’t mind me being cheeky. What’s your outfit like? My mum lives about 3 hours from me and the night before my wedding she drove all the way down to the hotel she was staying in, had forgotten her hat and shoes and had to drive all the way home again! Not sure where you are in the world but where I am in the uk its forecast for lovely weather on Saturday.
I was diagnosed on Monday with Lobular BC and I am very scared and I am having all the same thoughts you mentioned. I need a scan next week CT scan I think. I do not know how I will be able to sit in that waiting room again, waiting to be called in for my scan results.
I hope you find a way to cope and enjoy your daughters wedding and I hope you have a really special time,
Take care and if you need a chat please message me x
i was diagnosed with triple negative breast cancer in June and have been on chemo since middle of July
i have had 3 EC and my tumour went. From 10cm to 3cm!! On weekly taxol now and 3 weekly carbo. Then a double mastectomy hopefully to reduce my chances of this coming back.
Side effects of chemo for me have been manageable in the most part, obviously there are some bad days but that’s to be expected. It wasn’t any where near as bad as the horror stories I read :)
Triple negative breast cancer my doctor spoke through a lot with me, yes we can’t have hormone treatment but the chemo options in his experience seem to fight the TNBC better than other forms of BC.
it is really scary at first but once you get your treatment plan, it’s like you have a journey to follow and it isn’t as sad or scary anymore!
I’m generally a really organised person and the uncertantity about possible different treatment plans has been hard to get my head round.
Glad to hear the chemo isn’t quite as bad as I thought. Can I ask you, were you offered the ‘cold cap’ If so did it help with the hair loss. Also, how have you coped if you have lost all your hair. (Wig or scarves etc.)
once they decide on which treatment will work best for you it’s ok and the appointments soon are all booked in :)
i didnt do the cold cap, I lost my hair within 3 weeks and I got my wig sorted in week 1 plus I bought a lot of scarfs and bandanas which I have liked wearing. It’s a bit self conscious at first but now I’m really not bothered. I wasn’t too sad about losing my hair, i saw it just as a process I need to go through and it will grow back :)
