My mum's diagnosis and the year of 2019

Hi,

I didn't really know that posting on here was an option, but as I scroll through the internet looking for advice and help I came across the forum. 

Reading different people's stories and posts seemed to really help so I thought I'd try it myself and voice my story.

I'm 29 years old and my fantastic little mum is 67. She has had an absolutely awful few years with my dad having an affair, our family dog passing away, to being diagnosed with polymyalgia which was treated with steroids that then gave her type 2 diabetes, to this awful year. In May a week before her birthday my mum had a cardiac arrest. I received a call at 3.30am. Weeks of different complications occurred and mum was in and out of hospital more pills than I can count on both hands. Mum had lots of fluid on her chest so they decided to do an ultrasound, sat in the hospital following the scan next to Mum in bed and the consultant tells us they've found a 10cm mass on her pancreas. Weeks and weeks and weeks have gone by and we're at the last scan (we hope) to decide what's next steps are and when Chemo will begin. Mum's heart isn't strong enough so they cannot operate. 

My mum is a phenomenal woman. Has always been independent, strong, had a fantastic work ethic, sociable and the news has torn us all apart. 

Waiting is the hardest. Having absolutely no control waiting weeks on end with no answers is the hardest. 

I'm trying my absolute hardest to be strong for her but I cannot constantly help but think the worst. She isn't scared about losing her hair or the treatment, she just doesn't want to not be here. 

It's soul destroying. 

Does anyone have absolutely any advice or similar stories on how to deal with next steps and the process? 

Is greatly appreciate any advice, and thank you to everyone's posts I've read so far. 

  • Hello Lollyhead22, 

    Thank you for sharing your story with us I am glad you have joined our forum and I hope you will find the support you so much need at the moment and that you will meet some of our members who are also caring for a parent or a loved one with cancer. 

    Your mum certainly has been through a lot recently and she sounds like an amazing person. I am sure she is very happy to have you by her side. Many here will relate to what you are saying about this agonizing wait for weeks on end, searching for answers that take a long time to come. 

    I hope this latest scan will provide some insight into what to expect in the coming days and what the treatment plan is. I will now let others come and share their story with you - it does help to talk to others who understand exactly what you are going through at the moment. 

    We're all here for you at any time of day or night if you need to offload and share your feelings with others who are currently in a similar place. 

    Best wishes to you and your mum, 

    Lucie, Cancer Chat Moderator