Feeling so angry and let down

Basically I’m just going to have a rant. I feel like I’m being knocked down at every turn. Each time I’m told things aren’t that bad or I’m given some positive news I go back to be told that things are worse. All of this before I’ve even started treatment. I’ll break things down.

March; attends the gp with a lump, assured it’s nothing. Then waits 4 months to be referred to the breast clinic. I’m told there is a very concerning lump. I go back for results and the dr says good news it’s not breast cancer probably just swollen gland. I then go back a week later to be told I’ve got lymphoma. 

July we are now at the second hospital and I’m told things look very positive probably stage 2 very treatable etc. I go back yesterday to be told it is in fact stage 4 and has spread to my bones! It’s ok though because I should remain optimistic (sarcastic comment there)

I’m just so so angry. I honestly feel like someone keeps asking me to sit down and they are moving the chair away. 

To top things off I still don’t have a treatment plan which I was expecting to get yesterday because the drs need a meeting to discuss logistics, whatever that means.

I know I’m not the worst off by far and things can always be worse but I’m usually the person telling everyone to be positive and that’s well and truly gone already. 

  • Hey, I am so sorry that you’ve also had such a terrible time getting to diagnosis! Words can’t explain how let down you feel when you are raised in every way to trust the professionals they know what to do and what they are talking about. It’s even harder when you have no idea why things were not done correctly. Even now I have oncologists asking me why I waited so long, as if I had anything to do with the waiting period!?!? 

    I do hope it helps you to get things off your chest on the chat as I have really found it invaluable. Sending lots of love xx

  • Hi lila29

    Thank you for replying. It does help you getting it off your chest. I had a phone call today 1 hour appointment booked with oncologist for Monday so At least then I will know what my treatment plan will be. Also had dr appointment today he had not got results of biopsy so he was surprised when I informed him what the outcome was. He said but all your test have been negative. 

    I hope you are doing fine lots of love Joanne

  • Hey ladies - Just wanted to say thank you so much for replying to my post yesterday.   This is the first time I have ever 'blogged/chatted' to anyone on line about anything - and yes, it certainly did help to relieve some frustration,  and strengthen my resolve  to get the answers I need from the professionals to be able to deal with this situation the best way I can.   It's very hard not to be full of anger when you feel you are not  only fighting cancer, you are fighting the 'system';  but it's just so  important to stay strong and keep a clear head.   Will visit this chat area again.

    Wishing and willing us all to have the best possible outcomes.  xx

     

     

     

     

     

     

     

     

     

     

     

       

     

     

     

     

     

     

     

     

     

     

  • All the best to you too xxx