That's very reassuring, I'm glad she's doing well

Hi, 

I have triple negative breast cancer. I’ve just finished chemo & will have a double mastectomy with immediate DIEP reconstruction in a few weeks. 

Chemo is totally doable. I have a 2yr old & a 7yr old and they were the hardest part of it all. 

Chemo made me so fatigued and each type of chemo gave me different side effects. 

Are you doing Carboplatin/Paclitaxel and then FEC? 

xx

Hi ladies,

Thank you for sharing your stories. I was diagnosed last week so waiting on chemo dates etc. I have a couple of scans coming up and a telephone consultation to see if I qualify for the gene test which seems a bit odd, not sure what else to say apart from what my doc has told me. 

I'm glad to hear you are doing well and coming through the other side. My one friend said just take it one step at a time rather than thinking about it all otherwise it will be overwhelming! She had BC 10 years ago and is doing well

X

Hello ladies

i was diagnosed with Triple negative breast cancer in June and started chemotherapy Docetaxel and carboplatin I’m half way though treatment and my 4th cycle is tomorrow, fatigue is my biggest side effect from chemotherapy it’s self once I got over the constipation. I drink two litres of water and have the cold cap.

i had my half way check up and the tumour has gone all that’s left is thickness (what ever that means?) then in November I have my operation but no clue if mastectomy or not then I am opting for radiotherapy just to make sure it’s all gone. My medications are by far worse side effects then my chemotherapy it’s self and they knock me for 6, my treatment is 3 weekly cycles n by week 3 I’m back to been me eating ok, laughing going out shopping (fatigue is still there n I walk slower then a toddler lol but I do it)

My advice rest when your body need to rest, fresh air helps me but I live by the sea (so depending on your air quality no offence to anyone), chewing gum mint, loads of water and ice lolly’s (these have been my god send and help my dry metallic mouth feel better) also eat in small amounts but often then see how u feel after a week. Don’t try and take in everything they say as will overload your mind so take a note book and jot down any questions u may have every time you go for chemotherapy ask them to answer when they have time. 

Hi Annjo8,

Great news about your tumour, it makes it all worth well. I have my 2nd chemo on Monday also for triple negative breast cancer.

I used the cold cap, today is day 19 and my hair has shed a lot. The worse day being this morning.

Have you managed to keep your hair? I am feeling quite devastated as I thought the hair loss would be minimal.

Good luck with the rest of your treatment.

Take care,

Sue

I do have bald patches but it’s growing back as mine is caused more by my injections I have to take after chemotherapy for 5 days as one of the side effect is alopecia.

it is horrible and for me it’s grown ups who stare at me or the other day I had a couple in there late 20’s pointing saying stuff loud n laughing at my bald patches in the end I snapped at them have you not ever seen a woman with hair loss omg grow up and for the record I’m going though treatment for breast cancer which is chemotherapy. I walked away with my head held high and people around who heard everything started talking about the couple who sat there shocked n red faced not knowing what to do.

buy your self a lovely bandana off Amazon my Daughter got me some and I now use them x

Hi,

I have got two wigs and headscarves in preparation but I don't feel ready to wear them yet. Some people are just so studid and insensitive. Good on you for mouthing off, I think I would have just broken down and cried which is strange because I always used to be really feisty. 

All the best,

Sue

To be honest I wanted to cry but I thought no why should I when they are in the wrong and my hormones are all over the place them bam before I new it I went back. 

Only wear them when u feel ready and if you ever feel like you need to as may not need them. 

Today I came out of chemotherapy and thought sod it people can stare all they want as we are superstars kicking cancers *** and nothing will stand in our way so my headband went back in my bag n held my head high x

you will find strength u never new u had and when u do it’s amazing feeling xx

Morning ladies, 

Thanks for your message Annjo and joining our group It's nice to hear from ladies at different stages of our treatment. Im coming out if the numb stage now I have my first session on the 17 sep. I've stopped reading about my diagnosis as I got to the point of information over load and poor husband was worried about me. I have a curious mind and need to know everything!

Aww good on you! I think I would tell them off then burst into tears! 

I'm going to try the cold cap but I know my hair is prone to falling out when I'm stressed. When I lost my dad 10 years ago it thinned loads. Think I'm going to be a skin 'ead by week 2! OK now where are my DM' s. 

Xx