Breast MRI - tumour is bigger and nodes look enlarged

I was on her a few weeks back while I was nervously awaiting biopsy results on a suspicious looking lump in my left breast.  It turned out to be breast cancer. I was told it was: grade 2, 18mm and that according to the ultrasound and mammogram my lymph nodes looked fine.    The consultant told me that they’re confident that they will be able to successfully treat me. 

 

I very quickly started to get my head around the diagnosis.  Yeah it was *** that I had cancer but it was caught early and treatment wouldn’t be too gruelling.  Based on all of my Dr Google research - I was under the impression I’d be looking at a lumpectomy followed by radiotherapy and hormone therapy.  Oh, I wasn’t told the receptor status but the doctor told me it’s unlikely to be triple negative or HER2 because it isn’t grade 3 therefore she suspects its hormone receptive. 

 

Fast forward 1 week. I go in for an MRI. I had been reassured by the consultant the week before that the MRI was just to get a better view of the breasts ahead of surgery.   3hrs after the MRI I get a call from the hospital telling me they’d like me to come back in tomorrow for an ultrasound.  I completely freaked.  Couldn’t eat or sleep for the rest of that day.  Went to the appointment and met a radiologist who explained that the MRI had flagged up three more areas of concern. Oh and that according to the MRI the tumour was now 28mm and not 18mm as originally thought.  Of the three areas of concern 1 turned out to be a lymph node close to the tumour which she said had probably just reacted to the biopsy if had two weeks prior. She wasn’t worried about that one but still did a biopsy.  The other two we’re lymph nodes in my armpit area.  She said they were enlarged. Her words were “they’re not huge but they’re bigger than the others”. She then did a fine needle aspiration of one of the enlarged nodes and told me I’d get the results the following week when I am due to have treatment plan meeting (this Friday). 

 

I have fallen to pieces upon hearing this additional news.  I didn’t think the goalpost could just shift like that.  I thought anticipating or hearing the words “I’m sorry, you have breast cancer” was the worst thing ever. Turns out - it can get worse!  

 

I suppose I’m looking for some reassurance from fellow breast cancer girls on here.  Has anyone had wildly different sizing of their tumour and if so, which turned out to be most accurate out of MRI, ultrasound and mammogram?  I also wanted to know if anyone has had swollen lymph nodes that have turned out to be nothing? 

 

I just didn’t think the goal post could shift. I was originally diagnosed as stage 1a.  Now, depending on how many lymph nodes are involved I could be looking at 3a! 

 

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  • hey

    Sounds like you are having a bit of a tough time at the minute. I’ve got some experience of new things being thrown up when I was going through my diagnosis, I have a large tumour, they can’t agree on the size even with the scans ( I had mammogram, ultra sound, mri, ct and pet ct scan) I’ve accepted that and moved on to focus on what I can do about it, and its in my lymph nodes, I was originally told, mastectomy and reconstruction straight away and chemo, then chemo first, mastectomy then radiotherapy and reconstruction in a years time.  My scans also threw up a couple of other things to keep me on my toes, an inflamed appendix (no symptoms) which I had to have taken out before treatment could start and an internal mammory node that looks suspicious!!! 

    I know it’s frustrating but the good thing about the scan is that you will know what you are dealing with, you can get your plan sorted and it’s a step forward to getting this thing beat.

     

    let us know how you get on on Friday. X

     

  • Hi Woollylamb

    I have just come across your post and am interested how you knew that you had an inflamed appenix as i have been get niggles on my right side and went to see my GP last week and was sent for an ultrascan on my overies, which did'nt throw anything up. It isnt pain as such its like a nagging. I did mention it to the oncologist last Monday which she noted and had a scan from neck to top of my legs on Wednesday am an due to go back on Mon to discuss results. I am scared stiff that they said my breast cancer has spread and thats what the niggle is. i am in the same situation as you with the size of the tumour i was oringally told that it was 4 cm from the MRI, then when i had a lumpectomy it was 6cm then had to have a mastecomy with lymph nodes cleareance then told it was 6.9cm then the oncologist last monday said it was 7.3cm i nearly fell of the seat, but she said it didnt make any difference neither here or there. i had it in 1 & 1/2 lymph nodes and had a full clearance when i got my mastecomy.

    My head is in a bit of a mess as she said she wants me to have chemo, radio, hormone and bone infustions. I did mention the oncotype test to see what score I would get and she said o I think it will still come back that you need chemo. I am really struggling to deiced whether to have the chemo or not. Was wondering how you are now after you chemo, and whether you have had your radio yet. 

    I hope you dont mind me asking all of the these questions, but any advice would be greatly appriceated

     

    Thanks Christine x

     

  • Hi Christine

    really happy to answer any questions so ask away. So they picked up my inflamed appendix on a ct scan, I didn't have any symptoms just a niggly feeling on my right hand side every now and again and nothing I would have gone to my gp about. My onco said it could be cancerous which sent me into a spin, however in hindsight they always describe the worst case in any situation. I saw a bowel surgeon who ordered a pet ct scan. He said that he couldn't guarantee that it wouldn't rupture during chemo so on the basis that I don't need it, he took it out . Results were that it wasn't cancerous but I did have appendicitis. 
     

    I finished chemo beginning of September, had a scan and it had reduced my tumour to zero, so although it's not a walk in the park I personally think it was worth it. The only lasting side effects I have are my fingertips feel

    numb and my tastebuds haven't fully come back yet, and I get fatigued. 
    Since then I have had a mastectomy with immediate DIEP reconstruction, about 10 days ago so I'm recovering from that, and I need to have radiotherapy once I have healed. 
    The journeys we are put on through this process are tough ones, but I just think belt and braces, throw everything at it and then I know I've done everything I can. 
    ive also discovered that I am quite brave a Nd strong. 
    If you have any more questions pop them on here. 
    take care

    WL

  • Hi just read your post, feeling abit apprehensive. I have an mri in a couple of days time. Bern told at the moment my area is 11mm, I cannot feel it and lymph nodes was clear on scan. Just really wondering what else could flag up xx

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