Advice about cancer

Hi, I am new to all this and really just after some advice/support. We have had a rollercoaster the last 2 months. My husband has been diagnosed with oesophageal cancer and we have just been told there are traces of secondary cancer in his liver. We were told he was curable with surgery but now been told if it’s spread, which it has, it’s incurable. I just would like some other people’s experiences and his chances of survival or how long we have got? He can’t eat much due to the cancer and has lost quite a bit of weight but he is pretty fine within himself and feels better than he has in years due to the weight loss. We were told it spreads really slowly so surely that means we should still have plenty of time and obviously with treatment that time will only get longer? We have 4 young children and I just don’t know what to expect, our appointment for a treatment plan isn’t for at least 2 weeks so any help or advice would be appreciated :)

  • Hi moore05   uncurable is still treatable, it's not terminal, specialist will be working out the best treatment for your hubby, I've been uncurable for nearly four years now still living a normal life apart from getting older more aches and pains, there's others on forum carrying on normally well we call it the new normal, with cancer things are never quite the same, one day at a time don't rush things,, good luck for the future,.... Billy 

  • Hi Moore05

    My dad was diagnosed with oesophageal cancer in February, he'd had symptoms for a while but chose to ignore them, by the time he finally had an endoscopy a tumour had grown to 10cm. He had a PET scan which showed that it hadn't spread to other areas as such but he did have cancerous cells on the lymph nodes close to the aorta. Due to this they wouldn't operate because of the risk of damaging the aorta and him bleeding to death. He had a stent inserted to allow him to eat comfortably, although he still worries about it getting blocked, which as yet it hasn't. He started his first type of chemo shortly after which unfortunately didn't help, they have now started a type of chemo that they have described as a very aggressive form of chemo. He has lost his hair with this one but is not suffering from any other side effects. His oncologist has told us that there is a possibility of the tumour shrinking which might make it operable, however the risk with the aorta may still be a problem so I guess it will be the surgeons decision. My dad asked how long he had to live as he is stage 4, his oncologist told him 6months, he's still with us, his nurse said to him you don't die of cancer, you live with cancer. I wish you well with your journey through this awful time, 

  • Hi Billy, thanks for the reply and I feel a better knowing your story. Neither of us have been unfortunate enough to know anyone going through cancer so everything is so knew to us and as we were told it could be removed we did all that research but now told it’s spread and no meeting or information until 2 weeks so we feel very lost! I wish you well on your journey! Leanne 

  • Hi, thank you for your reply, I am sorry to hear about your dad but glad he is still fighting! Is he still well in himself and active etc, as in living a ‘normal’ life? We were told the surgery would be done with no chemo but now it’s spread they won’t operate but I’d like to think if the chemo can destroy or really shrink whatever is in his liver then the surgery could go ahead...we live in hope! We don’t even know what stage it is yet...do you know when you find that out? I wish your dad all the best on this horrible journey! Leanne